Canadian Journal of Disability Studies 2018-07-17T16:05:11-04:00 Jay Dolmage, PhD Open Journal Systems <p>The Canadian Journal of Disability Studies publishes peer-reviewed original articles that advance research in the multidisciplinary, international field of disability studies.</p> <p>All content is totally open access.&nbsp;The CJDS never charges any processing or publication fees, and is free and open to the public. This ensures that scholarship in the CJDS reaches the broadest possible audience, with no barriers for authors, institutions, or readers. The journal also advocates for Open Accessibility, ensuring that all content is fully accessible.<br><br>The journal embraces a wide range of methodologies and perspectives, values collaborative and cross-disciplinary work, community partnership, and creative approaches to scholarship.<br><br>Research in the Canadian Journal of Disability Studies will be of interest to scholars and students from across all academic disciplines, as well as anyone involved in disability arts, advocacy, community organization or policy.&nbsp; The journal foregrounds a critical disability studies perspective, committed to disability rights.</p> <p>Please consider registering as a reader to receive notifications and announcements.</p> Critical Disability Studies at the Edge of Global Development: Why Do We Need to Engage with Southern Theory? 2018-07-17T16:05:11-04:00 Xuan Thuy Nguyen <div class="page" title="Page 2"><div class="layoutArea"><div class="column"><p><span>This paper examines critical disability studies through the lens of Southern theory–a theoretical perspective on the process of knowledge production in social sciences which embodies intellectual projects from the global South (Connell, 2007). Building on Helen Meekosha’s question on decolonizing disability (2011), I critique the domination of Northern disability studies by proposing an engagement with Southern theory. My argument is three-fold: First, the use of Southern theory enables us to interrogate the domination of Northern epistemologies in Southern contexts; second, this theory unveils how colonialism has continued to manifest itself through the knowledge practices which have made the experiences of disabled people in the global South invisible; and finally, situated within the context of global development, this theory enables critical disability studies to act as a project of decolonization that engages with Indigenous ways of knowing about disability experiences. </span></p></div></div></div> 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Shifting Perspectives: Enhancing Healthcare Professionals' Awareness Through a Disability Studies Undergraduate Curriculum 2018-07-17T16:05:11-04:00 Kathleen McGoldrick Deborah Zelizer Sharon A. Ray <p>Disability Studies has experienced steady growth in the humanities, the social sciences, and education departments of a growing number of United States colleges and universities. One area of study that has remained static is undergraduate health science, where the number of schools offering a degree in disability studies has grown slightly from two in 2009 (Cushing &amp; Smith, 2009b; Taylor &amp; Zubal-Ruggieri, 2013) to four in 2015 (Zubal-Ruggieri, 2015). Some disability scholars believe that health science students are missing out on an opportunity to incorporate this perspective into their outlook and approach to disability. Longmore (1991) believes that "students interested in healthcare . . . need to have the opportunity to study this [disability] in the same way that they have the opportunity to study women's history or African American history or Asian history" (Stanford University News Service, Silent Screen Villains section, para.12).  This opportunity can shape a group of healthcare professionals who view disability from a unique individual perspective. The purpose of this survey research study was to examine alumni self-perception of the impact of completing a one-semester (16 credit) disability studies concentration in an undergraduate health science major. Fifty-one alumni from a New York area public research 1 level university who graduated between 2006 and 2012 with a Bachelor of Science in Health Science and a concentration in Disability Studies were surveyed to examine their perception of the helpfulness of the curriculum in four areas: practice and/or post-graduate study, comfort level interacting with people with disability, confidence level in ability to work with people with disability, and sensitivity and awareness of disability issues. This survey research study used descriptive statistics to analyze the responses to 10 Likert questions. The paper also includes comments from one open-ended question that allowed respondents to add additional thoughts and comments. The results strongly indicated that the health science alumni perceived a positive increase in the four focus areas as a result of completing the disability studies concentration.</p> 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Songs From the Dairy Section: Working with Disability & Dignity 2018-07-17T16:05:10-04:00 Zoe Dupree Fine <p>This essay opens with, “The idea of duty in one’s calling prowls about in our lives like the ghost of dead religious beliefs” (Weber, 1958, p. 182), words that encourage us to consider the idea of duty in one’s calling. If duty in one’s calling prowls about in our lives like a ghost, it haunts us. This is so because it is ever-present, and it is important to us. Weber’s words lead us to contemplate what having a calling means, what significance work should have, and what the purpose is of the work that we do when we do our jobs. What is the aim? Why have a job? </p> 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Physicians' Perceptions of Barriers to Equal Access to Reproductive Health Promotion for Women with Mobility Impairment 2018-07-17T16:05:10-04:00 Meera Joseph Sujen Saravanabavan Jeff Nisker <p>In Canada, 15% of women report having a disability, most frequently mobility-related. Research with women with disabilities has for decades brought attention to barriers to reproductive health promotion. Research with physicians regarding why these barriers exist and how they can be dissolved has not occurred. Physicians were recruited through email and pamphlets to participate in 30-45 minute in-person interviews, audiotaped and transcribed verbatim.  Charmaz-based qualitative analysis was supported by NVivo10<sup>TM</sup> software. Twenty-five interviews were conducted before theoretical sufficiency. Six themes were co-constructed: I-Physicians’ Perceptions of Barriers; II-Physicians' Perceptions of Consequences of Barriers; III-Resolving Barriers; IV-Physicians’ Sub-Understanding of Legal Right to Accommodation; V-Obligation of Physicians to Advocate for Accommodation; and VI-Language Suggesting Physicians’ Lack of Understanding of How Persons with Disabilities See Themselves and Want to be Seen. Physicians identified physical access barriers previously identified in critical disability studies literature, but did not identify the barriers of physician attitudes and lack of information provision as reported in this literature. Physicians perceived their additional time for pap smears and other surveillance strategies<em> </em>as barriers, particularly when not remunerated. Physicians were unaware of their legal obligation to accommodate under human rights codes, perceiving that taking extra time to provide accommodation was doing so out of the "goodness of your heart". Physicians used language illustrating many were unaware of how disabled persons see themselves and want to be seen. Education regarding disability rights and culture must be introduced immediately and prominently into all levels of medical education, with the educators being people with disabilities. </p> 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Review of Preston, The Fantasy of Disability: Images of Loss in Popular Culture (2017). 2018-07-17T16:05:10-04:00 Mikhel Hudrlik Portrayals of disability in mainstream culture and media, and questions about the implications they have for disabled people, are not new. However, in <em>The Fantasy of Disability: Images of Loss in Popular Culture</em>, Jeffrey Preston takes those questions to new places. 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Review of Berger, The Disarticulate: Language, Disability, and the Narratives of Modernity (2017). 2018-07-17T16:05:09-04:00 Jennifer Janechek “[D]isability theory seems marked by an inability to mourn while trauma theory suffers from an inability to stop mourning” (11). With this powerful assertion, James Berger launches his critique of the disjuncture between disability studies and trauma studies in <em>The Disarticulate: Language, Disability, and the Narratives of Modernity</em>, a work that explores figurations of “dys-/disarticulation,” or failures of articulation that result in exclusion from the social-symbolic order, in modernist literature. 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Review of Burstow (Ed.), Psychiatry Interrogated: An Institutional Ethnography Anthology (2016). 2018-07-17T16:05:09-04:00 Matthew S. Johnston This volume interrogates the psychiatric apparatus with an evidentiary scorn and authority that demands accountability and an apologetic response. This scathing indictment of psy-professionals who mobilized psychiatric knowledge and practices to degrade, torture, and gravely harm others will serve to (1) educate skeptics; (2) bolster activism and solidarity in the Mad Movement; (3) vindicate survivors of psychiatric violence and coercion who often experience their suffering and struggle in a void of isolation; (4) provide hope to the many disgruntled professionals working in the mental health field who question their assumed role in helping people; and (5) draw ferocious critique from countless agents who wholeheartedly defend the idea that psychiatry can/will/does help/treat/cure sickly people, whether with complete, partial, or entirely without our consent. 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Review of Wexler, Autism in a Decentered World (2016). 2018-07-17T16:05:09-04:00 Majia H. Nadesan Alice Wexler’s <em>Autism in a Decentered World</em> offers a novel epistemology of autism that valorizes autistic ways of experiencing by celebrating the artistic expressions of self-identified autistic people. Wexler launches her project to valorize autistic experience by first deconstructing the narrative fiction upon which modernist conceptions of neurological normality, or neurotypicality, were founded. 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement## Co-Developing Interprofessional Course Content with People with Disabilities 2018-07-17T16:05:08-04:00 Élise Milot Véronique Garcia Normand Boucher Gabrielle Fortin Marie Grandisson <p>Quality interprofessional and interorganizational practices are key to supporting people with disabilities and their families (Gilbert et al., 2010). It is critical to increase efforts to give health and social care professionals a better understanding of the roles and contributions of their colleagues and to encourage sharing between different disciplines. Professionals must also be supported in developing essential clinical knowledge, attitudes, and skills to build the foundations of a person-centred approach focusing on the needs of people with disabilities and their families (Lezzoni &amp; Long-Belil, 2012). </p> 2018-03-29T07:44:05-04:00 ##submission.copyrightStatement##