A Global Perspective on Violence Against Women with
Disabilities:
Evaluating the Response of Pastoral Care and Religious
Organizations
Jamie
Hussain, BTh, MTS, ThM,
Wycliffe College of the Toronto School of
Theology at the University of Toronto
Abstract
Within
the vulnerable population of women are distinctive populations of women
including Aboriginal women, immigrant women, women in poverty, and women with
disabilities, who are uniquely vulnerable with respect to risk. Of the world's
population, 10% or 650 million people have a disability, more than half of whom
are women. Studying a vulnerable population that exists within a vulnerable
population has come to be known as intersectionality.
This paper will give an account of the intersectionality of the vulnerable
statuses of women, and of disability, and the violence these women with disabilities
experience as a result of their unique vulnerability. A description of this
particular type of gendered violence will be explored and then addressed at the
international level drawing on the work of the United Nations, followed by a
brief overview at the national level. A synopsis of recommended responses will
then be presented, followed by a short evaluation of several pastoral
theological contributions as well as the responses of four Christian
organizations.
Key words
Disability;
Women; Violence; Pastoral; Christian
A Global Perspective on Violence Against Women with
Disabilities:
Evaluating the Response of Pastoral Care and Religious
Organizations
Untitled Poem
I am a proud disabled woman.
My body and mind may challenge
me.
I have learned my own special way to
meet my needs and to deal with life.
I have dreams and I have goals.
You will see I will achieve.
Give me respect as I deserve.
I will persevere for my rights.
Disabled friends, they
understand.
We share fears, joys, and
support.
I am female with feelings as
you.
Include me. Enable me. Celebrate me.
I am a disabled woman very much
alive.
Hear me. Care about me.
Treasure me.
- By an unnamed
woman with a disability,
read at the UN
Headquarters, October 23, 2012,
by Lois A. Herman
of the UN Report Network,
during the Panel
Discussion on Preventing and Ending Violence against Women with Disabilities.
Introduction
Of
the world's population, from 10% or 650 million (Herman, 2012) to 15% or 1
billion people have a disability (WHO, 2012), more than half of whom are women.
While the United Nations' efforts to combat violence against women has been a
priority for many years and has made strides, much work remains to be done combatting
violence against women in vulnerable populations such as Aboriginal women,
immigrant women, women in poverty, and women with disabilities (Brownridge,
2009, p. xv). In the past, scholars avoided studying the issue of violence
against women based on such distinguishing characteristics as ethnicity or
poverty for fear of perpetuating stereotypes. Now, however, "conducting
research on violence in vulnerable populations will contribute to an
understanding of these populations' unique vulnerabilities, and so is a way to
avoid such stereotypes" (Brownridge, 2009, p. 2).
Studying
a vulnerable population that exists within a vulnerable population has come to
be known as intersectionality
(Yuval-Davis, 2006, p. 193). While all women are potential victims of violence,
some women are targeted for specific forms of heightened levels of violence
because of additional discriminating factors, such as race, ethnicity,
sexuality, sexual lifestyle, culture, geographic location, refugee status,
disability, and indigenousness (Fried, 2012). Today, "intersectional
analysis of social divisions has come to occupy central spaces in both
sociological and other analyses of stratification" (Yuval-Davis, 2006, p.
206).
Women
with a disability experience violence unique to their intersectionality.[1]
I will describe this particular type of gendered violence and how it is addressed
internationally, nationally, and by the Christian community.
Violence against Women with Disabilities
Historically,
gender has often been overlooked as a disability issue as "women's
services and movements have tended to ignore disabled women" (Thiara,
Hague, Bashall, Ellis, &Mullender, 2012, p. 29). However, the issue of
violence against women with disabilities has begun to receive greater
consideration (Mays, 2006, p. 155).
Women
with a disability are at greater risk of violence than are both men with
disabilities and women without disabilities (Mays, 2006, p. 151). They
experience higher rates of abuse, greater severity of abuse, and additional
types of abuse:
á
Half of women with disabilities have
experienced physical abuse, compared to one third of non-disabled women (UN
Human Rights Council, 2006, p. 47).
á
Women with disabilities had more than 4
times the odds of experiencing sexual assault (Martin et al.2006, p. 823).
á
Women with disabilities are "twice
as likely to experience domestic violence as non-disabled women, and are likely
to experience abuse over a longer period of time and to suffer more severe
injuries as a result of the violence" (Manjoo, 2012, p. 9).
In
addition to experiencing increased risk of prevalence and cruelty, women with
disabilities are also more likely to be subjected to a wider variety of abuses,
such as physical, psychological, sexual or financial abuse, and to neglect,
social isolation, entrapment, degradation, detention, denial of health care,
forced sterilization, psychiatric treatment, chemical restraint, medical
exploitation, institutional abuse, or harassment ((Manjoo, 2012, p. 9; Mays,
2006, p. 150).
Domestic Violence: Intimate Partner Violence (IPV) and
non-Intimate Partner Violence (non-IPV)
Perpetrators
may be intimate or ex-intimate partners, other family members, paid personal
assistants or other caregivers. 90% of perpetrators are men who were known to
the woman (Thiara et al., 2012, p. 22; Mays, 2006, p. 151). IPV includes
violence by a spouse or partner, a family member, or a caretaker of a
vulnerable person (Neuger, 2001, p. 105).While there are similar factors at
work in both IPV and non-IPV such as issues of power and control, risk factors
vary.
Intimate
Partner Violence
A
2008 study showed that the male partners of women with disabilities shared the
common characteristics of, "being 2-3 times more likely to behave in a
patriarchal domineering manner, 1-1.5 times more likely to behave in a
possessive manner, and 1.5 times more likely to behave in a sexually jealous
manner toward their partners (Brownridge, Ristock, and Hiebert-Murphy, 2008, p.
31). A 2009 study determined that IPV impacts 54% of women with disabilities
(Slayter, 2009, p. 193), resulting from, "their potential for reduced
community inclusion and a deeper dependence on intimate partners"
(Slayter, 2009, p. 183). Common perpetrators included, "women's current
and ex-intimate partners" who were "the sole perpetrators among 44%
of the women physically assaulted and 48% of those sexually assaulted"
(Martin et al, 2006, p. 834).
Non-Intimate
Partner Violence
Even
when the perpetrator is not an intimate partner, specific power and control
issues are present. For example, "the vulnerability, isolation and
dependence which disabled women often experience are exacerbated when a paid
personal assistant or carer is the perpetrator and may have a huge amount of
power over the woman they are caring for in isolated, one-to-one situations,"
for example, during medical appointments or in the home (Thiara et al., 2012,
p. 29).
During
a medical appointment, a woman with a disability may observe her right to
privacy by separating herself from a family member or paid worker. The cost of
privacy for women with a disability however, is the increased vulnerability to
abuse. Nosek, Foley, Hughes, and Howland note that, "Medical settings are
particularly restricting and often remove fromÉwomen what defense mechanisms
they may have, such as putting their wheelchairs or other mobility devices out
of reach" (2001, p. 185). Nosek et al. disclose one woman's report of
abuse: "At the clinic my neurologist once made me take all my clothes off
and began to fondle me" (2001, p. 185). Another reported, "The
orthotist told me he had to put his finger in my vagina to be sure the
(artificial) leg fit right" (Nosek et al., 2001, p. 185).
One-to-one
situations occur with even greater frequency in the homes of women with
disabilities when they are receiving support getting dressed, bathing, or using
the washroom. Compounding this
problem is that fact that "due to poor wages for support staff,
understaffing, and lack of supervision, residents are not able to receive
quality servicesÉand mechanisms exist within the bureaucracy that discourage or
actively punish residents or other staff who complain about such conditions"
(Nosek et al., 2001, p. 185). Nosek et al., provide further reports of women
who suffer abuse at the hands of their providers of care: "My attendant
sexually abused me three times"; "My caregiver had an affair with my
husband when I got sick"; "She would hold me down in the bed and say
horrible things to me" (2001, p. 185). Yet the authors also show that women with disabilities may find
it difficult to retain the
services of paid care providers, making them "more tolerant of abusive
behaviours" (Nosek et al., 2001, p. 185).
Social Dynamics which Contribute to the Vulnerability of
Women with Disabilities
Social
attitudes maintain the vulnerability of women with disabilities. They may not
be taken seriously, considered unfit for mothering or believed unlikely to be
partners in intimate, sexual relationships. Alternatively, women with an
intellectual disability may be considered promiscuous (Mays, 2006, p. 151). Women
with disabilities are hindered when seeking help, "as a result of physical
or communication-related inaccessibility (e.g., lack of interpreters, etc.) of
police stations, courthouses, or other IPV-related service locations"
(Slayter, 2009, p. 183). A United Nations preface to a 2012 panel discussion reports:
Significant
barriers exist to escaping violence, reporting such crimes, and in accessing
justice and services. These include fear of losing independence or fear of
retaliation, lack of access to communications, barriers to mobility and lack of
transportation to police stations or other services that could provide
assistance, lack of accessible information or education regarding violence, and
reliance upon a perpetrator for assistance with essential life activities.
Prevention, care and recovery programs for women who have experienced violence often
lack a disability-perspective (UN Human Rights Council, Oct 23 2012,
p. 1).
Global Engagement of Violence Against Women with
Disabilities
The
United Nations' Human Rights Council, on June 17, 2011, adopted resolution
17/11, "Accelerating efforts to eliminate all forms of violence against
women" (UN Human Rights Council, June 17 2011, p. 7), in which it
requested that the Office of the High Commissioner for Human Rights prepare a "Thematic
Analytical Study on the Issue of Violence Against Women and Girls and
Disability" (UN Office of the High Commissioner for Human Rights, Mar 30
2012, p. 3). The findings of the study confirmed that globally, the violence
experienced by women with disabilities remains largely invisible. Women with
disabilities continue to be subject to unique forms of abuses such as, "withholding
of medication and assistive devices, refusal of caregivers to assist in daily
functioning, psychological manipulation and harming or threatening to harmÉthey
are also particularly vulnerable to forced sterilization and other medical
interventions carried out without their consent" (UN Office of the High
Commissioner for Human Rights, Mar 30 2012, pp. 7-8). Current legislative,
administrative and policy efforts may not suitably link gender and disability. The
data collected on violence against women with disabilities may be inconsistent,
incomplete and poorly managed (UN Office of the High Commissioner for Human
Rights, July 11 2012).
National Engagement of Violence Against Women with
Disabilities
Despite
the UN Conventions on the Rights of Persons with Disabilities (CRPD), and the
Elimination of All Forms of Discrimination Against Women (CEDAW), and the
ratifications of these Conventions by UN member nations, it remains difficult
to "determine whether there has been effective implementation of these
obligations with regard to preventing, remedying and responding to violence
against women with disabilities" (Ortoleva & Lewis, 2012, p. 15).
Several nations which
have ratified both CEDAW and CRPD find persistent obstacles which hinder
efforts regarding violence against women with disabilities.
For
example, in 1983 Australia ratified CEDAW, and then CRDP in 2008. In February
2011 the Parliament of Victoria received the results of the, "Inquiry into
Access to and Interaction with the Justice System by People with an
Intellectual Disability and Their Families and Carers" (Parliament of
Victoria, Nov 20 2012). The report noted that many family violence services
were not equipped to meet the needs of women with disabilities. Emergency and
crisis accommodation services often lacked funding to make the locations physically
accessible, and the staff often lacked the expertise necessary when working
with women with disabilities. Further, such crisis housing was communal,
requiring women to share their bed with their children, and to share the other
living quarters with several other families, resulting in living arrangements
that were unaccommodating for women with a disability (Ortoleva & Lewis,
2012, p. 69).
While
Jamaica ratified CEDAW in 1980 and was the first nation to sign and ratify CRDP
on March 30 2007, there is little in the way of national or enforceable
legislation to protect women from violence in general and no laws against
sexual harassment, rendering the violence experienced by women with
disabilities virtually invisible. Further inhibiting progress in this area may
be the Jamaican superstition which views disability as the result of an
ancestor's sin (Ortoleva & Lewis, 2012, p. 77-78).
Despite
Uganda's ratification of CEDAW in 1985 and CRPD in 2008, "the reality on
the ground in Uganda is quite different from the stated goals and the rhetoric
of politicians" (Ortoleva and Lewis, 2012, p. 91). Human Rights Watch
reports that many women with disabilities have been turned away from reporting
incidents by a corrupt police force, more than 1/3 have experienced sexual
abuse, and NGOs are their main source of help as local governments have been
ineffective (Ortoleva and Lewis, 2012, p. 91).
Canada
ratified CEDAW in 1981 and CRPD in 2010; however, a recent court case suggests
that discriminatory attitudes remain in the Canadian justice system towards
women with disabilities and the violence perpetrated against them. On 10 Feb.
2012, the Supreme Court of Canada released its decision involving a sexual
assault complaint of a woman (K.B.) with a mental disability. K.B. complained
to a teacher that her stepfather had touched her breasts, buttocks and genital
area while playing the 'hugging game'. When testing her competence to testify,
K.B. was able to demonstrate that she knew that telling the truth was 'good'
and a lie was 'bad'. The judge then challenged her competence by asking
abstract questions, "What do you think of the truth?" and "If
you don't tell the truth do you go to jail?" K.B.'s answer did not satisfy
the judge who determined that she was unable to understand what the duty to
tell the truth meant. Neither her story (her testimony), her complaints to a
teacher, nor a statement made to police were allowed as evidence. Subsequently
her stepfather was acquitted. However, the Supreme Court of Canada disagreed with
the decision, concluding that the judge's expectation of K.B. was too high and
what the law requires from adult witnesses with mental disabilities is simply
the ability to communicate evidence and promise to tell the truth (Ontario
Women's Justice Network, Mar 2012).
These
brief national synopses of Australia, Jamaica, Uganda, and Canada, of some of
the issues that women with disabilities who have experienced violence continue
to face, support the findings of the United Nations Human Right's Commission's study
that these hindrances continue to persist in countries post-ratification of
CEDAW and CRPD.
Violence Against Women with Disabilities: Recommendations
Three
2012 United Nations reports recommend changes including greater focus of effort
in such areas as the social perception that exists towards women with
disabilities, UN modelling of integration of women with disabilities, national
legislation and justice systems, and crisis response, and media images. The
three reports relied upon heavily for the following recommendations in this
section include: Ortoleva and Lewis, "Forgotten Sisters: Report of NGOs,"
(Aug 21 2012); Rashida Manjoo, UN Human Rights Council, "Report of the
Special Rapporteur on violence against women, its causes and consequences,"
(Aug 3, 2012); and, UN Office of the High Commissioner for Human Rights, "Thematic
Study on the Issue of Violence Against Women and Girls with Disabilities,"
(March 30 2012). The reports suggest that efforts towards the empowerment of
women and gender equality from the UN, nations, NGOs, or others, should invite
the unique contributions of women with disabilities to encourage dialogue,
strategy, programs, policy development, and public visibility of women with
disabilities in leadership.
The
reports also recommend that Governments revoke any laws discriminating against
women with disabilities, while creating laws that prohibit forced sterilization
and protect a woman's right to free and informed consent. Nations must also
amend legislation in such a way that issues of gender and disability will be interlinked
in significant ways. Also, nations should improve and expand their data
collection and management strategies that will disseminate the statistical data
according to gender, age, disability, etc. National reforms are required to
ensure that women with disabilities are not unnecessarily imprisoned due to the
lack of appropriate health care facilities, and that healthcare services and
facilities are equipped to adequately meet the need of women with disabilities.
Women with disabilities should be included in justice system reforms, including
the production of training materials on the prevention and response to violence
against women with disabilities so that reports of abuse will be met with
appropriate responses from all levels of the justice system, such as police,
the courts, and legal aid.
Finally,
the reports recommend crisis response services that are mandated to protect
women from violence, social supports, and community centres that are accessible
to women with disabilities. Shelters, for example, need to be properly equipped
and professionally trained staff. Free counselling and programs should be
available and ready to accommodate women with disabilities who have experienced
violence, and should promote autonomy, independence, and dignity.
The Response of the Church to the Crisis of Violence Experienced
by Women with Disabilities
When
Jesus came to set the oppressed free (Luke 4:18), he modelled for his followers
how to love their neighbours as themselves (Mark 12:31). As such, the Christian
community is expected to lead the way in challenging the ethical, moral, and
social disgraces of society. How have theologians and the church met Jesus'
challenge in response to women with disabilities? A brief survey of the
following will provide a response: the contributions of three disability
theologians, four literary works of pastoral care, and four religious
organizations.
Disability
Theology as a Response: Swinton, Reynolds, and Eiesland
Over
the years John Swinton has addressed wide-ranging issues facing people with
disabilities. Swinton acknowledges that people with disabilities are
susceptible to poverty, exclusion, lack of opportunity, an eroded "sense
of self-worth and personhood" (2000, p. 89), and overprotective types of
care which they may be, "forced to accept" (2000, p. 117). Swinton also
acknowledges the intersectionality of gender and disability: "Women are
the oppressed of the oppressedÉThey carry the double burden of low class and
low gender status" (Bennet, 2012, p. 453). For Swinton, however, it is not
the disability which inhibits a person, rather disabilities, "exist only
where social structures prevent a person from fully interacting" (Bennet,
2012, p. 433). The primary loss of people with profound intellectual disabilities
is not loss of intellect, "but the loss of value placed on them by society
whose systems of valuing render them worthless and frightening" (2012, p.
517-518). Swinton proposes that society become receptive and welcoming in a
way, "that allows them to flourish" (2012, p. 532). In combating disability-selective
abortions and infanticide, Swinton suggests that the social acceptability of prenatal
testing which has led to the accelerated rate of abortions due to disabilities sends
a message to those people with disabilities already living that: "since
you're here, we're going to care for you as best we canÉbut everyone would be
better off if you were not here at all" (2007, p. 191-192).
Swinton
seeks a change in society rather than seeking a cure in people with
disabilities. However, by focusing on changing communities so that they exist
in such a way as to engender the 'flourishing' of people with disabilities without
addressing the high rates of intimate violence, he disregards the violence
perpetrated against people with disabilities, or the greater violence
perpetrated against women with disabilities, which renders all community
efforts to enable flourishing ineffectual.
Tom
Reynolds, in his book Vulnerable
Communion: A Theology of Disability and Hospitality, likewise advocates
changing societal attitudes towards people with disabilities rather than
changing people with disabilities to conform to society. He seeks, "Fresh
criteria . . . to measure the moral character of society and its way of
mediating 'welcome.'" (Reynolds, 2008, p. 69). Such a welcoming community
necessitates a justice that, "names, resists, and seeks to dislodge
oppression and dehumanizing violenceÉin love...Yet in the end, tempered by
justice, love must hold the right of refusal to those powers and principalities
that neglect or abuse the vulnerability of persons...For people with
disabilities have been the recipients of deep injustice" (Reynolds, 2008,
p. 130). With Swinton, Reynolds speaks of the societal or communal wrongs
committed against people with disabilities, and the right responses to them,
without addressing the dehumanizing violence suffered by the individual behind
closed doors and the care required for that abused individual.
In
her work, The Disabled God: Toward a
Liberatory Theology of Disability, Nancy L. Eiesland emphasizes, "in
the experiences of women with disabilities ordinary themes that are meaningful
for many people with disabilities" (Eiesland, 1994, p. 29). In allowing
women with disabilities to speak for themselves, Eiesland challenges the
societal structures and beliefs which perpetuate their oppression stating: "The
perception that disability is a private physical and emotional tragedy to be
managed by psychological adjustment, rather than a stigmatized social condition
to be redressed through attitudinal changes and social commitment to equality
of opportunity for people with disabilities is persistent" (Eiesland,
1994, p. 66). Acknowledging the perceived inferiority of people with
disabilities, Eiesland makes the significant point that, "women with
disabilities tend to be viewed more negatively by both men and women than
comparably disabled men" (Eiesland, 1994, p. 65). However, that is as far
as she takes the issue of intersectionality. Eiesland also limits her
discussion of oppression to the various forms of social stigmatization,
exclusion, and discrimination.
An
obvious thread running through the works of Swinton, Reynolds, and Eiesland,
are their social or communal approaches, which are much needed in the theology
of disability discussion. Yet they fail to address the high rates of violence.
While society may one day change in the way these authors advocate, as long as violence
continues to be perpetrated behind closed doors the victims will never achieve
the acceptance, inclusion, value, equality, and the opportunity to flourish for
which these authors hope. Also missing from their discussion is the vital
component of gender. Until the discussions of violence and gender are brought
into dialogue with disability in a meaningful way, theological conversations of
change will remain largely hypothetical.
Pastoral
Theological Responses: Stevenson-Moessner, Neuger, and Poling
Women
with disabilities are more likely to experience abuse than non-disabled women,
as mentioned above, yet one study has shown that they are also more likely to
report the abuse. Brownridge states, "Victims with disabilities
consistently had higher odds of confiding in a family member, a friend or
neighbour, a physician or nurse, and/or a religious advisor about the violence"
(2009, p. 247). For these professionals, which include pastors, Brownridge
advises that "special training in issues of violence in general, and
violence against women with disabilities in particular, is warranted"
(2009, p. 256), thus emphasizing the need for pastoral theological literature
that addresses the care for women with disabilities who have experienced
violence.
However,
pastoral theology literature for women who have experienced violence
demonstrates the scarcity of information on this topic, shedding further light
on the disconnect between feminist advocates and feminist considerations for
women with disabilities. The impact of this oversight on women with
disabilities is made evident through the following brief survey of four
valuable pastoral theological contributions written to guide pastors in their
care for women who have experienced violence.
In
Women in Travail & Transition: A New
Pastoral Care, edited by Maxine Glaz and Jeanne Stevenson-Moessner,
Miller-McLemore critiques culture's devaluation of women. She states, "Maximum
productivity and the bottom line remain the chief criteria for measuring worth
and success. In a culture with such valuesÉ'family women' do not count" (1991, p. 67). If her assessment is
accurate, and society does measure one's worth based on one's ability for
quantitative production and accumulation and 'family women' do not count, then
how much less does society value 'family women with disabilities', a
consideration Miller-McLemore overlooks (1991,
p. 67)? In the following chapter, "Woman's Body: Spiritual
Needs and Theological Presence," Dean and Cullen bring women's health
issues forward in order to help pastors "understand the integration of
gynecological experiences as a part of our humanness, a part of the whole and
not an ultimate definition or an irrelevance to be ignored" (Dean &
Cullen, 1991, p. 87). This chapter could have addressed disability under the topic
of embodiment, as it is not addressed elsewhere.
Neuger's
practical suggestions for pastoral support are not applicable to many women
with disabilities. A most important aspect of care is helping a woman develop
an escape plan that is both, "detailed and realistic enough to get her out
of the house in an emergency" (2001, p. 119). Neuger suggests that an
escape plan should include drawing a floor plan and mapping out the escape
routes from the rooms where the violence occurs. Items such as important documents,
money, car keys, etc., should be readily accessible. If there are children
involved, the plan needs to detail how they will get out safely (Neuger, 2001,
p. 119). Women who may be visually impaired, depend on a wheelchair or walker, are
unable to drive, or even lack the ability to draw a basic floor plan, may find these
suggestions of very little use.
James
Newton Poling, while addressing the intersections of economic vulnerability and
family violence, lists language, religion, nationality, gender, race, class,
sexuality, and disability as social variables impacting economic oppression
(2002, p. 214). Yet, in advising pastors to be sensitive when evaluating a
person's economic state, Poling lists diagnostic data that includes age,
gender, race, culture, marital status, family, occupation, and religion (2002,
p. 224). Poling does not include disability as a factor influencing one's
economic status. However, as his study has borne out a link between a family's
economic status and violence (2002, p. 2), it is vital that women's
intersection with disability also be included as a diagnostic question in
Poling's work, as having a disability often adds tremendous financial
pressures, which in turn, according to Poling, also "exacerbate
experiences of family violence" (2002, p. 2).
In
Jeanne Stevenson-Moessner's Women and
Developmental Issues in Pastoral Care, Neuger summarizes pastoral care
paradigms of response. She suggests that pastors should have a basic crisis
approach, a thorough knowledge of the dynamics of battering, the ability to
assist in developing a safety plan, quick access to a list of women's shelters
and legal resources, and an approach to care that focuses on the woman's
strengths and resources rather than assessing deficits and causes (2000, p. 83).
Stevenson-Moessner also includes a chapter in which Buford describes what it is
like for an adult woman to have her life disrupted by an acquired or hidden
disability (2000, p. 335). This chapter is valuable in giving pastors insight
into what women who acquire a disability cope with from the onset to revising
long-term goals and vocations. In the former chapter there are no
considerations given to women with disabilities in advising pastors in their
knowledge of providing care, lists of shelters that are wheelchair accessible,
or legal resources that specialize in disability issues. But the latter chapter
neglects the experience of women with congenital disabilities and provides
little in the way of guiding pastors in providing care to women with
disabilities, acquired or congenital. While there is a chapter on pastoral care
for women experiencing violence, and a chapter on women with acquired
disabilities, the book lacks a much needed chapter that addresses pastoral care
for women with chronic disabilities.
While
the pastoral theological literature seeks to educate pastors about the
specialities of providing care to women who have experienced violence, there
seems to be an unawareness that these same pastors also require a further
specialized understanding and knowledge when it comes to providing care when
disabilities are involved. Much work remains to be done in providing pastors
with the literature that will enable them to provide care for women with
disabilities who have experienced violence.
Christian
Organizations: Friendship, Christian Horizons, Christian Reformed, Pentecostal
Assemblies of Canada
Isolation
causes women with disabilities to be more vulnerable to violence, which is one
reasons why, on March 31, 2009, Ontario celebrated the closing of
its last large-scale
institution, seeing more than 6000 people move into communities across the
province (Community Living Ontario). While the quality of life possible in a
community group home vastly exceeds that of institutionalization, underfunding
results in low staffing which fosters isolation, and therefore the
vulnerability of group home residents. Jenny Uechi of the Vancouver Observer reported on the closure of group homes by the BC
government due to spending cuts (Uechi, 2011). The options for these adults
forced to move out of their homes are either, to move in with their parents who
will then become caregivers, or the foster care model which means living with a
family who is paid to take them in. While living with their parents would be
ideal, it is often not possible due to the high costs, the full time jobs the
parents have, or, due to the age of the parents, they are in need of caregiver assistance
themselves. On the other hand the foster care model can no more prevent the
isolating situations that increase vulnerability than can group homes (Uechi,
2011). Other models of support, such as the independent living model, can cause
women with developmental disabilities to be equally at risk to abuse by those
in the community who would take advantage of their vulnerability.
While
there are different religious approaches of support for people with
disabilities, such as the Muslim community organizations Smile and the Canadian
Association of Muslims with Disabilities (Toronto Muslims 2013), or the Jewish
organization Reena (Reena 2013), the brevity of this paper does not allow for a
cross sectional review of religious supports for people with disabilities,
although such a study could be of tremendous value for the sharing of best
practices in subverting vulnerabilities. However, as this paper is reviewing
Christian religious practices of support, the following is an overview of some
of the current efforts of four Christian organizations to address the
vulnerability of people with disabilities, which are not being put forward as a
panacea, but only as representative of some of the current Christian
approaches.
Among
the religious organizations addressing the isolation of women with disabilities
is Friendship Ministries. This 30 year-old international and
inter-denominational organization's mission is to "share God's love with
people who have intellectual disabilities and to enable them to become an
active part of God's family" ("Mission"), and "to nurture
spiritual growthÉin the context of personal and meaningful relationships"
("What is a Friendship Group"), as people with disabilities are often
not afforded the same communal equality of participation as their non-disabled
peers. One factor lying behind the religious marginalization is the
pervasiveness of the consumer culture which attributes worth to people based on
their bodily appearances. Reynolds explains: "Led by advertisement and
entertainment media, we crave the ideal bodily form and function - the
fashionable outfit, the sculpted body, heightened athletic ability, sexual
potency, and the like. Only the ideal becomes depicted as normal, represented
as commonplace" (2008, 96). Heiss adds: "Those who do not fit within
constructions of the ideal body are subordinated others, and considered less
than inferior to the idealÉthis oppression influence(s) individuals' abilities
to access resources and participate in society (2011). One of countercultural
effects of Friendship Ministries is the undoing of the isolation that increases
the vulnerability of women with disabilities through the concepts of "family,"
"personal and meaningful relationships," "love, justice,
respect," and "friendships." For women with disabilities, especially
intellectual disabilities, such personal connections are vital to minimizing
the vulnerability that comes with the isolating effects of disability. Being limited in intimate human
relationships to care providers, who may be paid staff or medical professionals,
family, or a spouse, inherently increases the risk of violence. While
Friendship Ministries does not address violence against women as one of its
mandates, this religious organization might provide an invaluable service to
women with intellectual disabilities through increasing relationships, thereby
decreasing their isolation and subsequently, their vulnerability to violence.
The
faith based agency Christian Horizons (CH) is Ontario's largest service
provider for people with "exceptional needs" ("About CH").
With 3000 staff ("FAQ") working in 200 homes ("About CH")
across the province, CH maintains a significant influence in the lives of women
with disabilities. After CH staff pass the hiring process of multiple
interviews, police checks and character references, there are several trainings
that educate and equip staff with abuse prevention strategies. Reducing the Risk I trains staff on
recognizing abuse, responding to abuse that is suspected or witnessed, and
reporting abuse. Reducing the Risk II
is more focused on reducing vulnerability to abuse through identifying factors
that contribute to and mitigate a person's vulnerability, and establishing protocols
to follow when providing personal care. Encouraging and supporting personal
choice and family involvement is also emphasized. The Person-Centered Support training, while not directly addressing
issues of abuse, focuses on the value of relationships and how to assist others
in developing and maintaining relationships which, as noted earlier, responds
to the isolation that contributes to vulnerability. Training is also provided
to staff equipping them for the circumstances that follow an allegation of
abuse. Responding to Reports training
takes the staff through the logistical, legal, and policy specifics of
investigation, explaining the responsibilities that staff and supervisors have
through the process, none of which mentions a counselling aspect. Another
training regime that is beneficial to a victim's well-being, post abuse, is Grief Matters. Here staff are made aware
that grief is the intensely personal experience of loss. While the focus is the
onset of grief due to a death, there are helpful strategies that apply to grief
due to a variety of losses, less so however for losses such as dignity,
self-worth, trust, and other losses that are experienced by a person who has
been abused. While the CH prevention and response trainings for staff around
abuse are thorough, they lack the gendered perspective necessary to mitigate
the greater vulnerability and violence experienced by women with disabilities.
Also lacking from staff training are the gender-specific and religion-specific counselling
and resources necessary to better help a person begin to work through the
healing process within their specific intersectional context, following their
experience of violence.
Serving
a much broader population the Christian Reformed Church (CRC) addresses issues
of abuse using Safe Church Ministry
as a resource. Through Safe Church
Ministry the CRC creates abuse awareness and develops prevention and
response strategies which seek to, "protect children, youth, and the most
vulnerable" ("Safe Church Ministry"). This resource encourages
training for church leaders that includes responsibility to maintain clear and
healthy boundaries, education regarding the power authority figures have, and the
necessity of accessing emergency services when required ("Safe Church
Ministry"). From a care perspective for those who have been abused, the
victimized must be given a voice, empowerment, the opportunity to choose how to
move forward, the opportunities to be heard, the time to grieve and rediscover
self, and in their own time establish trust in relationships ("Safe Church
Ministry"). To its credit, Safe
Church Ministry also acknowledges that, "gender is a factor that has a
positive correlation to abuse. Recognizing the subtle (and not-so-subtle) ways
that women are devalued and disrespected in our culture, the church must work
to affirm the infinite value and dignity of women, and of all people in our
churches" ("Safe Church Ministry"). Recognizing the relationship
between culture and the devaluing of women in the church is an invaluable first
step. Other steps that should be included, however, are not only the links
between culture and the greater vulnerability of women with disabilities in the
church, but also prevention and care strategies specific to women, and women
with disabilities.
Canada's
largest Pentecostal denomination with more than 1100 churches ("About Us"),
the Pentecostal Assemblies of Canada (PAOC), seeks to combat abuse using the
literature Plan to Protect ("Mission
Canada"), by Winning Kids Inc., a publication used in more than 5000
Canadian churches ("Our Clients"). Plan to Protect guides a church in its recruiting process, training
for adults and youth, procedures for protection, and reporting and responding
to allegations. This valuable and widely-used tool created for the protection
of children and youth contains strategies that when followed, may also provide
protection for people with disabilities. The PAOC's efforts to combat abuse in
the church, while intentionally addressing the vulnerability of children, lacks
not only a gender focus but also a disability focus, ignoring the vulnerability
of people with disabilities in general and women with disabilities in
particular.
This
overview of four Christian organizations is but a brief representation of some
of the attempts to curtail vulnerability, and is not intended in any way to
paint a comprehensive picture of all existing religious, and non-religious,
efforts to combat violence against women with disabilities. Certainly further
exploration of the current best practices of other organizations to ensure the
safety of the most vulnerable in their midst, would be of tremendous value.
Conclusion
While
the services provided by both disability organizations, Friendship Ministries and
CH, make significant contributions in addressing abuse against adults with
disabilities, both lack a gender focus which underlines a failure to consider
gender as a contributing factor of abuse. Once this fact is recognized, the
next step must include making gender specific counselling available to help men
and women with disabilities heal from their uniquely gendered experiences of
violence.
Similarities
are also found in the CRC and PAOC denominations which combat abuse in the
church through the implementation of Safe
Church and Plan to Protect
respectively. In both cases the focus is a non-gendered approach of abuse
prevention for children, largely ignoring the vulnerability of adults with
disabilities and the greater vulnerability of women with disabilities. This is
concerning given the following statistics. Of the 12% of Canadian women who
reported having a disability, or about 1.7 million women (Crompton, 2009), 40
to 60% or approximately 680,000 to 1 million women with disabilities experience
violence annually (DAWN Canada, "Women with Disabilities and Violence:
Fact Sheet," 2010). These statistics point to the greater vulnerability
and prevalence of violence against women with disabilities and to its
invisibility in Western society, in the works of disability theology, in
feminist pastoral care literature, and to the erroneously imbalanced response
of religious organizations to gender and disability issues as they relate to
violence experienced by women, not only in Canada, but across the globe.
Bibliography
Bennet,
J. (2012). Women, Disabled. In B. Brock & J. Swinton (Eds.), Disability in the Christian Tradition: A
Reader, (pp. 427-466). Grand Rapids, MI: Eerdmans.
Brock,
B. (2012). Introduction. In B. Brock & J. Swinton (Eds.), Disability in the Christian Tradition: A
Reader, (pp. 1-23). Grand Rapids, MI: Eerdmans.
Brownridge,
D. A. (2009). Violence Against Women:
Vulnerable Populations. New York: Routledge.
Brownridge,
D. A., Ristock, J. & Hiebert-Murphy, D. (2008). The High Risk of IPV
against Canadian Women with Disabilities. Med
Sci Monit, 14 (5), 27-32.
Buford,
P. (2000). Women with Acquired Disabilities: Constructing New Lives in a
Strange Land. In J. Stevenson-Moessner (Ed.), In Her Own Time: Women and Development Issues in Pastoral Care.
(pp. 333-350). Minneapolis, MI: Fortress Press.
Christian
Horizons. FAQ. Retrieved 3 Dec., 2012 from http://www.christian-horizons.org/about-us/faq/.
Christian
Horizons. About CH. Retrieved from 3 Dec., 2012 from http://www.christian-horizons.org/about-us/about-christian-horizons/.
Christian
Reformed Church. Safe Church Ministry. Retrieved 27 Nov, 2012 from http://www.crcna.org/pages/safechurch_index.cfm.
Christian
Reformed Church. Safe Church Ministry: A Church Leader's Role. Retrieved 27
Nov., 2012 from http://www.crcna.org/pages/safechurch_index.cfm.
Community
Living Ontario. "Deinstitutionalization." Community Living Ontario. Retrieved
12 April, 2013 from http://www.communitylivingontario.ca/issues/policy-issues/deinstitutionalization
Crompton,
S. (2009). Women with Activity Limitations. Retrieved 1 Dec., 2012 from http://www.statcan.gc.ca/pub/89-503-x/2010001/article/11545-eng.htm#a1.
Accessed
DAWN
Canada. Women with Disabilities and Violence: Fact Sheet. Retrieved 1 Dec.,
2012 from http://www.womensequality.ca/Images%20PDFs%202011/Women%20with%20Disabilities%20and%20Violence,%20Factsheet%202010.pdf.
Dean,
M. J. & Cullen, M. L. (1991). Woman's Body: Spiritual Needs and Theological
Presence. In M. Glaz & J. S. Moessner (Eds.), Women in Travail & Transition: A New Pastoral Care (pp. 86-108).
Minneapolis, MN: Fortress Press.
Eiesland,
N. L. (1994). The Disabled God: Toward a
Liberatory Theology of Disability. Nashville, TN: Abingdon Press.
Fried,
S. T. (2003). Violence Against Women. Health
and Human Rights: An International Journal 6, (2), Retrieved 12
Nov., 2012 from http://www.hhrjournal.org/archives-pdf/4065431.pdf.bannered.pdf.
Friendship
Ministries. Mission. Retrieved 27 Nov., 2012 from http://www.friendship.org/.
Friendship
Ministries. What is a Friendship Group. Retrieved 27 Nov., 2012 from http://www.friendship.org/.
Friendship
Ministries. What We Believe. Retrieved 27 Nov., 2012 from http://www.friendship.org/.
Heiss,
Sarah N. (2011)."Locating the Bodies of Women and Disability in
Definitions of Beauty: An Analysis of Dove's Campaign for Real Beauty."
Disability Studies Quarterly 31(1), Retrieved 8 March, 2013 from http://dsq-sds.org/article/view/1367
Herman,
L. A. (2012). Panel Discussion on Preventing and Ending Violence against Women
with Disabilities: Transcript, October 23, 2012. Retrieved 14 Nov., 2012 from http://www.un.org/disabilities/default.asp?navid=46&pid=1602.
Martin,
S. L., Ray, N., Sotres-Alverez, D., Kupper, L. L., Moracco, K. E., Dickens, P.
A., Scandlin, D. & Gizlice, Z.
(2006). Physical and Sexual Assault of Women with Disabilities. Violence against Women 12 (9), 823-837.
Mays,
J. M. (2006). Feminist disability theory: domestic violence against women with
a disability. Disability & Society 21
(2), 147-158.
Miller-McLemore,
B. J. (1991). Women who Work and Love: Caught Between Cultures. In M. Glaz
& J. S. Moessner (Eds.), Women in
Travail & Transition: A New Pastoral Care (pp. 63-85. Minneapolis, MN:
Fortress Press.
Neuger,
C. C. (2000). Narratives of Harm: Setting the Developmental Context for
Intimate Violence. In J. Stevenson-Moessner (Ed.), In Her Own Time: Women and Development Issues in Pastoral Care.
(pp. 65-86). Minneapolis, MI: Fortress Press.
Neuger,
C. C. (2001). Counseling Women: A
Narrative, Pastoral Approach. Minneapolis, MN: Fortress Press.
Nosek,
M. A., Foley, C. C., Hughs, R. B. & Howland, C. A. (2001). Vulnerability
for Abuse Among Women with Disabilities. Sexuality
and Disability 19 (3), 177-189.
Ogrodnik,
Lucie. (2008). Child and Youth Victims of Police-reported Violent Crime. Retrieved
1 Dec., 2012 from http://www.statcan.gc.ca/pub/85f0033m/85f0033m2010023-eng.pdf.
Ontario
Women's Justice Network. Case Comment: R. v D.A.I., Supreme Court Protects
Rights of Intellectually Disabled, March 2012. Retrieved 20 Nov., 2012 http://owjn.org/owjn_2009/component/content/article/48-women-with-disabilities-and-deaf-women/321-case-comment-r-v-dai-supreme-court-protects-rights-of-intellectually-disabled.
Ortoleva,
S. & Lewis, H. (2012). Forgotten Sisters – A Report on Violence
Against Women with Disabilities: An Overview of Its Nature, Scope, Causes and
Consequences. Social Sciences Research
Network. Retrieved 19 Nov., 2012 from http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2133332.
Parliament
of Victoria. (2011). Inquiry into Access to and Interaction with the Justice
System by People with an Intellectual Disability and Their Families and Carers.
Retrieved 20 Nov., 2012 from http://www.parliament.vic.gov.au/lawreform/article/1463.
Pentecostal
Assemblies of Canada. About Us. Retrieved 3 Dec., 2012 from http://www.paoc.org/about.
Pentecostal
Assemblies of Canada. Mission Canada: Next Generation Children. Retrieved 3
Dec., 2012 from http://www.paoc.org/canada/nextgen-children.
Poling,
J. N. (2002). Rendering unto God:
Economic Vulnerability, Family Violence, and Pastoral Theology. St. Louis,
MO: Chalice Press.
Reynolds,
T. E. (2008). Vulnerable Communion: A
Theology of Disability and Hospitality. Grand Rapids, MI: Brazos Press.
Perreault,
S. (2012). Criminal Victimizations and Health: A Profile of Victimization Among
Persons with Activity Limitations or Other Health Problems. Retrieved 1 Dec.,
2012 from http://www.statcan.gc.ca/pub/85f0033m/85f0033m2009021-eng.htm.
Manjoo,
R. (2012). Report of the Special Rapporteur on violence against women, its
causes and consequences, Aug 3, 2012. Retrieved 12 Nov., 2012 from http://www.ohchr.org/Documents/Issues/Women/A.67.227.pdf.
Reena.
"About Us." Reena, Retrieved 26 April, 2012 from http://www.reena.org/about
Reynolds,
Thomas E. Vulnerable Communion. Grand
Rapids: Brazos Press, 2008.
Slayter,
E. (2009). Intimate Partner Violence against Women with Disabilities:
Implications for Disability Service System Case Management Practice. Journal of Aggression, Maltreatment &
Trauma 18, 182-199.
Statistics Canada. "Criminal
Victimizations and Health: A Profile of Victimization Among Persons with
Activity Limitations or Other Health Problems," Samuel Perreault, http://www.statcan.gc.ca/pub/85f0033m/85f0033m2009021-eng.htm (accessed December 1, 2012),
7.
Stevenson-Moessner,
J. (2000). In Her Own Time: Women and
Development Issues in Pastoral Care. Minneapolis, MI: Fortress Press.
Swinton,
J. (2000). Resurrecting the Person:
Friendship and the Care of People with Mental Health Problems. Nashville:
Abingdon Press.
Swinton,
J. (2007). Raging with Compassion:
Pastoral Responses to the Problem of Evil. Grand Rapids: Eerdmans.
Swinton,
J. (2012) The Importance of Being a Creature: Stanley Hauerwas on Disability.
In B. Brock & J. Swinton (Eds.), Disability
in the Christian Tradition: A Reader. (pp. 512-545). Grand Rapids, MI:
Eerdmans.
Thiara,
R. K., Hague, G., Bashall, R., Ellis, B. & Audrey Mullender. (2012). Disabled Women and Domestic Violence.
London, UK: Jessica Kingsley Publishers.
Toronto
Muslims. "Community Services." Toronto Muslims, Retrieved 26 April,
2013 from http://www.torontomuslims.com/CommunityServices/tabid/62/uc/main/action/cat/parentID/85/Default.aspx
(accessed April 26, 2013).
Uechi,
Jenny. "Disabled Adults and Families Devastated by Provinces Proposed
Group Home Closures." Vancouver
Observer, August 23, 2011, Retrieved 12 April, 2013 from http://www.vancouverobserver.com/city/2011/08/23/disabled-adults-and-families-devastated-provinces-proposed-group-home-closures
UN
Human Rights Council. (2006). In-depth study on all forms of violence against
women, July 6 2006. Retrieved 12 Nov., 2012 from http://daccess-dds-ny.un.org/doc/UNDOC/GEN/N06/419/74/PDF/N0641974.pdf?OpenElement.
UN
Human Rights Council. (2011). 17th Session of the Human Rights
Council – Resolutions, Decisions and President's Statements, June 17,
2011. Retrieved 19 Nov., 2012 from http://www2.ohchr.org/english/bodies/hrcouncil/17session/resolutions.htm.
Accessed
UN
Human Rights Council. (2012). Panel Discussion on Preventing & Ending
Violence against Women with Disabilities: Background Note to Panel Discussion,
October 23, 2012. Retrieved 13 Nov., 2012 from http://www.un.org/disabilities/default.asp?navid=46&pid=1602.
UN
Office of the High Commissioner for Human Rights. (2012). Thematic Study on the
Issue of Violence Against Women and Girls with Disabilities, March 30, 2012. Retrieved
19 Nov., 2012 from http://www2.ohchr.org/english/issues/women/docs/A.HRC.20.5.pdf.
UN
Office of the High Commissioner for Human Rights. (2012). Strengthening the Protection
of Women and Girls with Disabilities, a Priority, July 11, 2012. Retrieved 19
Nov., 2012 from http://www.ohchr.org/EN/NewsEvents/Pages/Strengtheningtheprotectionofwomenandgirlswithdisabilities.aspx.
WHO
Fact Sheet. (2012). Disability and Health, November 2012. Retrieved 12 March
2013 from http://www.who.int/mediacentre/factsheets/fs352/en/index.html
Winning
Kids Inc. Our Clients. Retrieved 3 Dec., 2012 from http://www.winningkidsinc.ca/?i=2279&mid=1000&id=375254.
Yuval-Davis,
N. (2006). Intersectionality and Feminist Politics. European Journal of Women's Studies 13, (3), Retrieved 12 Nov., 2012 from http://ejw.sagepub.com/content/13/3/193.short.
[1] Although the terms "persons with disabilities", "persons with activity limitations" and disabled persons" might reflect different realities, those three terms are used interchangeably by Statistics Canada to identify persons with activity limitations (Statistics Canada). In this paper I will use the terms "women with a disability" and "women with disabilities" interchangeably.