Review:
Driedger, D. (ed.) (2010). Living the Edges: A Disabled Women's Reader. Toronto: Inanna Publications and Education Inc. ISBN
978-1-926708-17-1.
Reviewed
By Sheila Hamilton
Diane
Driedger describes Living the Edges: A Disabled Women's Reader as "a vehicle for
women with disabilities to share experiences with other disabled women, and
with the public at large" (p. 1).
I agree that this book achieves the goal of giving disabled women a
voice – thus, this a book that I would strongly recommend to people
unfamiliar with the lives of disabled women.
Driedger explains in the introduction that in 1993, the
feminist journal Canadian Woman
Studies/les cahiers de la femme published a special issue on Women and
Disability. Inanna
Publications and Education editor, Lucianna Ricciutelli, asked Driedger to
edit a disabled women's reader using the 1993 special issue of Canadian Woman Studies/les cahiers de la
femme as a base. The essays,
poems, and pieces of visual art in the reader are divided into five sections
– "Who we are on the edges", "Naming the edges: Barriers",
"Violence on the edges", "With us on the edges: Relationships
and sexuality", and "Challenging the edges". The collection begins with an
introduction by the editor, Diane Driedger, and
finishes with biographical information on the contributors.
Driedger introduced me to the work of women that I wish to
learn more about. This is one of
the strengths of the reader. An additional
strength is that articles by women with intellectual disabilities are
included. Driedger
fulfilled the mandate of giving disabled women voices by doing this. Voices of people with intellectual
disabilities in general, and women specifically are largely unheard in our
society and in disability studies literature.
The
first section of the book – "Who We Are On the Edges" –
is strong. Sharon Dale Stone's
article "Must Disability Always Be Visible: The Meaning of Disability for
Women" is one of the articles from the 1993 special journal issue on Women
and Disability that is timeless.
Stone reminds us that 'the body can teach us'. I would add that 'disability can teach us'. This is the key importance of
disability studies. As an emancipatory discipline, disability studies needs to benefit
disabled people. However, disability
studies also has the potential to benefit our communities. The community can learn and profit from
listening to those of us living the edges. Charlotte Caron in the article "Living on the Edges"
– which she co-wrote with Gail Christy – states that "É from
the edges we can name injustice and stand in solidarity with others who do not
have privilege and power in society."(p.38). Caron and Christy assert that
as disabled women, they have wisdom needed by our world – wisdom such as:
"the norm has to be diversity" (p. 34). Susan Wendell's article "Feminism, Disability and
Transcendence of the Body" and art and poetry by Anjali
Dookeran and Marie Annharte
Baker persuasively close this very good section of the book.
The
second section "Naming the Edges: Barriers" did not start as
effectively as the first section.
This is due to the use of dated articles from the 1993 special issue. Cheryl Gibson's "Margins Are Not
for Cowards" and Doreen Demas's "Triple
Jeopardy: Native Women with Disabilities" have important content that
required updating. The
contribution by Tanis Doe and Barbara Ladouceur, "To
Be or Not to Be? Whose Question is it Anyways: Two Women with Disabilities
Discuss the Right to Assisted Suicide" is another example of a dated
article. Fifteen years later, there are many
– including Canadian disabled women - who could have written eloquently
about this subject. Jane Field's "Coming
out of two closets" was less dated.
Field states "I don't hide my disability and I don't "overcome"
it, either." (p. 87). This
simple statement says much that is relevant today. Julie Devaney's "Performing
my Leaky Body" is exceptional.
Nancy E. Hansen's "A Delicate Balance: Chronic Conditions and
Workspace" and Sally A. Kimpson's "Living
Poorly: Disabled Women Living on Support" are examples of pieces that gave
voice to disabled women's experiences and provided thoughtful analysis of those
experiences. Not all of the
articles required explanation but when they did and it wasn't included, this
contributed to my perception that some articles were not as valuable.
Primarily
newer pieces made the third section "Violence on the edges" strong. Maria Barile
in "An Intersectional Perspective on Violence: A New Response"
reminds us that the definition of violence must be expanded to include the experiences
of disabled women. For example, Barile reminds us that purposefully using complex language
to intimidate women with intellectual disabilities is violence. Barile challenged
my ableist perspective on violence against women
– informing us that aggressors against disabled women are most often "people
in positions of power paid for by the state". Barile encourages us to continue
to work hard for inclusion.
Michelle Owen's "Have you experienced violence
or abuse?: Talking with Girls and Young Women with Disabilities" is
another exceptional article in this section of the book. This piece is based on relatively
recent research and gives specific examples of how the results of disability
stigma are experienced as violence by girls and young women with disabilities.
"With us on the edges:
Relationships and sexuality", the fourth section, is a mix of timeless and
out-of-date pieces. They are
important pieces in a historical sense.
The book would have been improved if pieces like Linda Nancoo's "Marriage-able?: Cultural Perspectives of
Women with Disabilities of South Asian Origin" were either revised or
accompanied by a newer commentary by the same author.
"Challenging the Edges" is the title of the final
section of "Living the Edges".
"Walking a Women's Path: Women with Intellectual Disabilities"
and "The Freedom Tour Documentary: An Experiment in Inclusive Filmmaking"
describe two interesting projects with and by women with intellectual
disabilities. Josee
Boulanger, Susie Wieszmann, and Valerie Wolbert's description of the making and screening of a film
about institutions for disabled people challenges from the edges rather than challenging the edges themselves. As
Margaret J. Wheatley asserts "The edge is
where life happens."
Dreiger's stated goal with this book was to combine key
articles from an important special issue of a feminist journal with newer
pieces by and for disabled women.
This goal was achieved. The
result is a book giving a voice to disabled women. As such it is an important contribution to disability
studies literature. There are
specific pieces in this collection that I would suggest to any disability
studies scholar, disabled woman, feminist, co-worker, friend, or family member.
Reference:
Wheatley,
Margaret, J. (2010). Perseverance.
San Francisco: Berrett-Koehler Publishers Inc.