Disability Discourse in South Asia and Global Disability Governance

  • Hari KC PhD Candidate, Global Governance Balsillie School of International Affairs
Keywords: Disability Discourse, People with Disabilities in Nepal, South Asia, Disability Governance, Medical and Social Models of Disability


Disability studies, although an emerging discipline, has already advanced in the Global North compared to the Global South in that the discourse around disability has shifted its focus from mere survival debates of the persons with disabilities to subtler and more nuanced forms and manifestations of disability existence. Even at the policy level, the “medical model” of disability has been substituted by different versions of the “social model.” The main idea of the “social model” of disability is that human beings are extremely diverse in terms of mental and bodily faculties, functions and structures, and disability indeed results from the “disabling” infrastructures and environment that society has created without taking this human diversity into account. Some versions of the “social model” go so far as to glorify the bodily and mental disabilities, deeming them merely as manifestations of human variation or diversity that offers a unique experience to be valued and celebrated (Roush & Sharby, 2011). Disability in any form is merely a variation of humanity, but the disadvantages this diversity creates are the lived-realities that should not and cannot be left unattended. What I find even more problematic is the idea of glorifying and romanticizing disability. Such a glorified notion of disability, I argue, becomes yet another means to oppressing the persons with disabilities. The “medical model” that some disability studies scholars in the Global North have discarded can prove still relevant to the Global South, and particularly to South Asia. If disability activists and civil society organizations relish only in the rhetoric of disability as a “human rights” issue, and not pay ample attention to the physical and mental realities of the persons with disabilities, the “rights-based” discourse could ultimately be counterproductive. 

Author Biography

Hari KC, PhD Candidate, Global Governance Balsillie School of International Affairs

PhD Candidate, Global Governance Balsillie School of International Affairs


Asch, Adrienne. “Critical Race Theory, Feminism, and Disability.” Bonnie G. Smith & Beth
Huchinson, eds. Gendering Disability. Rutgers University, 2004, 9- 44.
Brolan, C. (2016). A Word of Caution: Human Rights, Disability, and
Implementation of the Post-2015 Sustainable Development Goals. Laws, 5(2), 22.
Buckingham, Jane. “Writing Histories of Disability in India: Strategies of Inclusion.” Disability
and Society. Vol. 26, No. 4, June 2011, 419-431.
Chaudhry, V., Mattaini, Mark A., Fujiura, Glenn, Gill, Carol, Gleeson, James, & McKean, Lise.
(2012). Disability and Participatory Development in South India: Perils of Neoliberal Governance.
Convention on the Rights of Persons with disabilities and Optional Protocol. United Nations
Enable. http://www.un.org/disabilities/default.asp?navid=12&pid=150.
Das, Shilpa. “Hope for the Invisible Women in India: Disability, Gender and the Concepts of
Karma and Shakti in the Indian Weltanschauung.” Eds. Janet Horrigan & Ed Wiltse, Hope Against Hope: Philosophies, Cultures and Politics of Possibility and Doubt. Amsterdam; New York: Rodopi, 2010.
Disability and the Millennium Development Goals, A Review of the MDG Process and
Strategies for Inclusion of Disability Issues in Millennium Development Goal Efforts. United Nations Publication Sales No. E.11.IV.10. United Nations, 2011.
Disability in the South-East Asia Region, 2013. World Health Organization. Disability Injury
Prevention and Rehabilitation Unit Department of Sustainable Development & Healthy Environments (SDE) World Health Organization, Regional Office for South-East Asia, World Health House, Indraprastha Estate, Mahatma Gandhi Marg, New Delhi – 110002, India.
“Disabled kids in sorry state.” The Himalayan.
Doniger, Wendy & Brian K. Smith, Trans. The Laws of Manu. New Delhi: Penguin Books, 1991.
Flynn, Eilionoir. 2011. From Rhetoric to Action: Implementing the UN Convention on the Rights
of Persons with Disabilities. London: Cambridge University Press.
Eide, Arne H., Shailes Neupane, Karl‐Gerhard Hem. Living conditions among people with
disability in Nepal. SINTEF Technology and Society, Department of Health Research 2016. Trondheim, Norway.
Ghai, Anita. Disability and the Millennium Development Goals. Journal
of Health Management, 11(2), 279-295.
Ghai, Anita. “Disability in the Indian Context: Post-Colonial Perspectives.” Eds. Mairian Corker
& Tom Shakespeare, Disability/Postmodernity: Embodying Disability Theory. London; New York: Continuum, 2002.
Gurung, Indra Maya. “Interview with Sajha Sawal.” BBC World Service Trust. January 11,
Haegele, J., & Hodge, S. (2016). Disability Discourse: Overview and Critiques of the Medical
and Social Models. Quest, 68(2), 193-206.
Health & Medicine Week (2016): 4130. Web.
Hiranandani, Vanmala and Deepa Sonpal. “Disability, Economic Globalization and
Privatization: A Case Study of India.” Disability Studies Quarterly. Vol 30, No 3/4 (2010). http://dsq-sds.org/article/view/1272/1302.
Humpage, L. (2007). Models of Disability, Work and Welfare in Australia. Social Policy &
Administration, 41(3), 215-231.
Hussain, Y. (2005). South Asian disabled women: Negotiating identities. Sociological
Review, 53(3), 522-538.
ILO. Constitution of Nepal, 2015 (English translation).
Jaeger, Paul T and Cynthia Ann Bowman. 2005. Understanding Disability: Inclusion,
Access, Diversity, and Civil Rights. London: Praeger.
Kayess, Rosemary and Phillip French. “Out of Darkness into Light? Introducing the Convention
on the Rights of Persons with Disabilities.” Human Rights Law Review 8:1(2008), 1-34.
Kecskes, Sophia. Addressing Nepal’s Hidden Health Challenge: Depression. Yale
Global Health Review, April 2015.
Kim, Mi Yeon. “Women with Disabilities: The Convention Through the Prism of Gender.” Eds,
Maya Sabatello and Marianne Schulze. Human Rights and Disability Advocacy. Philadelphia: University of Pennsylvania Press.
Lamichhane, Kamal (2013). Disability and barriers to education: Evidence from Nepal.
Scandinavian Journal of Disability Research, 15(4), 311-324.
Lamichhane, Kamal. (2012). Employment Situation and Life Changes for People with
Disabilities: Evidence from Nepal. Disability & Society, 27(4), 471-485.
Lamichhane, Kamal. “All you need is law.” The Kathmandu Post. September 07, 2011.
Lamichhane, Kamal. “Interview with ‘Fireside’” Kantipur Television, Kathmandu, Nepal, July
29, 2012.
Lamichhane, K., Ballabha, D., & Kartika, D. (2014). Analysis of Poverty between People with
and without Disabilities in Nepal. IDEAS Working Paper Series from RePEc, IDEAS Working Paper Series from RePEc, 2014.
Lamichhane, K., & Okubo, T. (2014). The Nexus between Disability, Education, and
Employment: Evidence from Nepal. Oxford Development Studies, 42(3), 439-453.
Lamichhane, & Sawada. (2013). Disability and returns to education in a developing country.
Economics of Education Review, 37, 85-94.
Lamichhane, K. (2015). Disability, education and employment in developing countries : From
charity to investment. Delhi, India: Cambridge University Press.
Lamichhane, K. (2015). Social inclusion of Persons with disabilities: A case from Nepal's decade
long civil war. Scandinavian Journal of Disability Research, 17(4), 287-299.
Mainstreaming disability in the new development paradigm: Evaluation of Norwegian support to
promote the rights of persons with disabilities: Nepal country report. NORAD. February 2012.
Manandhar, K., Risal, A., Linde, M., & Steiner, T. (2015). The burden of headache disorders in
Nepal: Estimates from a population-based survey. The Journal of Headache and Pain, 17(1), 1-10.
Marks, D. (1999). Dimensions of oppression: Theorising the embodied subject. Disability and
Society, 14(5), 611-626.
Megret, Frédéric. The Disabilities Convention: Human Rights of Persons with Disabilities or
Disability Rights? Human Rights Quarterly, Vol. 30, No. 2 (May, 2008), pp. 494-516. Johns Hopkins University Press.
Meekosha, Helen and Karen Soldatic. “Human Rights and the Global South: the case of
disability.” Third World Quarterly, Vol. 32, No. 8, 2011, pp 1383–1398.
Mitra, Sophie. (2006). The capability approach and disability. Journal of Disability Policy
Studies, 16(4), 236.
Mitra, Sophie, Aleksandra Posarac and Brandon Vick. Disability and Poverty in Developing
Countries: A Multidimensional Study. World Development, Vol. 41, pp. 1–18, 2013_ 2012 Elsevier Ltd.
Mol, T., Brakel, W., & Schreurs, M. (2014). Children with Disability in Nepal: New Hope
Through CBR? Disability, CBR & Inclusive Development, 25(1), 5.
Nepal Disabled Women Association (NDWA). Report on strengthening the protection of human
rights of women and girls with disabilities. April 17, 2013.
Oliver, Michael and Colin Barnes. 2012. The New Politics of Disablement. New York: Palgrave
Palmer, M., & Harley, D. (2012). Models and measurement in disability: An international
review. Health Policy and Planning, 27(5), 357-364.
Panthi, Meen Raj. The Disability Situation in Nepal. Alliance for Equality of Blind Canadians.
Parekh, Pushpa Naidu. 2007. “Gender, Disability and Postcolonial Nexus.” Wagadu, Vol. 4.
Paudel, Dariang, Keeling, & Mehata. (2016). Addressing the needs of people with disability in
Nepal: The urgent need. Disability and Health Journal, 9(2), 186-188.
Puri, M., Misra, G., & Hawkes, S. (2015). Hidden voices: Prevalence and risk factors for
violence against women with disabilities in Nepal. 15, 261.
Rimmerman, Arie. 2013. Social Inclusion of Persons with disabilities: National and
International Perspectives. New York: Cambridge University Press.
Roush, Susan E., & Sharby, Nancy. (2011). Disability reconsidered: The paradox of physical
therapy.(Advances in Disability Research)(Report). Physical Therapy, 91(12), 1715.
Saleeby, P., & Yadama, Gautam. (2005). Exploring Disability and Poverty in
Nepal: An Application of the Capability Approach.
Sherry, Mark. 2008. Disability and Diversity: A Sociological Perspective. New York: Nova
Science Publishers.
Simkhada, P., Regmi, P., Pant, P., Van Teijlingen, E., & Sathain, B. (2015). Stipulating Citizen’s
Fundamental Right to Healthcare: Inference from the Constitution of Federal Republic of Nepal 2015. Nepal Journal of Epidemiology, 5(4), 516-517.
Shrestha, S., & Weber, G. (2002). The situation of older people with intellectual disability in
Nepal: A pilot study. Journal of Intellectual & Developmental Disability, 27(4), 242-254.
Simkhada, P., Shyangdan, D., Van Teijlingen, E., Kadel, S., Stephen, J., & Gurung, T. (2013).
Women's knowledge of and attitude towards disability in rural Nepal. Disability and Rehabilitation, 35(7), 606-13.
Singal, N., Muthukrishna, N., & Maudslay, L. (n.d.). Inclusive education in Nepal: Assumptions
and reality. Childhood, 21(3), 418-424.
SK, Joshi. Disability in Nepal. Kathmandu University Medical Journal (2004) Vol. 2, No. 1 pp
Slaughter, A. (2004). A new world order / Anne-Marie Slaughter. Princeton,
N.J.; Oxford: Princeton University Press.
State of Civil Society, 2013: Creating an enabling environment. CIVICUS: World Alliance for
Citizen Participation.
Stein, Michael Ashley and Penelope J.S. Stein. 2007. “Beyond Disability Civil Rights.” Harvard
Law School. http://digitalcommons.ilr.cornell.edu/gladnetcollect.
Subedi, Anjali. Women with disabilities helpless against sexual advances. Republica.2013/12/04.
Subedi, J, Brown, J, Basnyat, K, Subedi, S, & Tausig, M. (2010). Measuring disability
in developing context: the case of Nepal. Gerontologist, 50, 388.
Thapa, S., & Hauff, B. (2012). Perceived needs, self-reported health and disability among
displaced persons during an armed conflict in Nepal. Social Psychiatry and Psychiatric Epidemiology, 47(4), 589-595.
Toboso, Mario. Rethinking disability in Amartya Sen's approach: ICT and equality of
opportunity. Ethics and Information Technology, Volume: 13 Issue: 2   Pages: 107-118   Published: JUN 2011.
Tol, W., Komproe, I., Thapa, S., Jordans, M., & Sharma, B. (2007). Disability associated with
psychiatric symptoms among torture survivors in rural Nepal. Journal of Nervous and Mental Disease, 195(6), 463-469.
Toledo, Pamela Molina. “At the United Nations… ‘The South Also Exists.” Eds, Maya Sabatello
and Marianne Schulze. Human Rights and Disability Advocacy. Philadelphia: University of Pennsylvania Press.
Wendell, Susan. “Who is Disabled? Defining Disability.” The Rejected Body: Feminist
Philosophical Reflections on Disability, Pp. 11-33, Rutledge, 1996.
13). States News Service, p. States News Service, June 13, 2016.
World Bank and Disability in South Asia: A Portfolio Review. October 2003.
World Report on Disability. World Health Organization and World Bank. 2011.