Writing Institutionalization and Disability in the Canadian Culture Industry: (Re)producing (Absent) Story
DOI:
https://doi.org/10.15353/cjds.v6i3.369Keywords:
Disability, journalism, culture industry, survivor narratives, institutionalizationAbstract
From the lens of a non-survivor ally who is also a journalist, activist, sister, and educator, I offer a reflexive account of reconciling with failed media activism. By applying Horkheimer and Adorno’s (1972) concept of the culture industry to my own experience of pitching a story about the impending closure of Saskatchewan’s Valley View Centre to a Canadian publication, this article investigates the theoretical underpinnings of a Canadian culture industry confronted with the politics of institutionalization, survivorship, and intellectual disability. The culture industry operates on the inclusionist premise that the public needs to understand cultural locations of disability that bestow an artificial sense of bodily agency on the spectator, thus placing media producers in “expert” roles by culture industry standards. This article combines memory and critical theory in a writing-story that addresses the unresolvable task of un/covering disability’s presence and absence in a journalistic practice that cannot penetrate the walls of an institution.
References
Adams St. Pierre, E. (2014). A brief and personal history of post qualitative research: Toward ‘Post Inquiry.’ Journal of Curriculum Theorizing, 30(2), 2-19.
Barry, D. (2014, March 9). The boys in the bunkhouse. The New York Times. Retrieved from http://www.nytimes.com/interactive/2014/03/09/us/the-boys-in-the-bunkhouse.html?_r=0
Bérubé, M. (2016). The Secret Life of Stories: From Don Quixote to Harry Potter, How Understanding Intellectual Disability Transforms the Way We Read. New York and London: New York University Press.
Boyer, J. P. (1988). House of Commons. Standing Committee on Status of Disabled Persons. No News is Bad News: First Report of the Standing Committee on the Status of Disabled Persons. Ottawa: Queen’s Printer for Canada.
Buck, G. (2015). Finding a place. Maisonneuve. Retrieved from https://maisonneuve.org/article/2015/03/2/finding-place/
Burton, P. (2013). Huronia: Pierre Burton warned us 50 years ago. The Toronto Star. Retrieved from https://www.thestar.com/news/insight/2013/09/20/huronia_pierre_berton_warned_us_50_years_ago.html
Cachia, A. (2013). Cripping cyberspace: A contemporary visual art exhibition curated by Amanda Cachia. Canadian Journal of Disability Studies, 2(4).
Canadian Broadcasting Corporation (2014, February 6). The economic benefits of hiring disabled employees. Retrieved from http://www.cbc.ca/player/News/TV+Shows/The+National/ID/2439669551/
Canadian Radio-Television and Telecommunication Commission (CRTC). Broadcasting Public Botice CRTC 2006-77, Commission's Response to the Canadian Association of Broadcasters' Final Report on the Presence, Portrayal and Participation of Persons with Disabilities in Television Programming, No. 77. Retrieved from http://laws-lois.justice.gc.ca/eng/acts/B-9.01/
Canadian Union of Public Employees 50 (2012, February 26). Members of CUPE 600-3 raise concerns for Valley View Centre residents as government plans for relocation. Retrieved from http://cupe.ca/disability-rights/6003-raise-concerns-valley-view-centre
Canadian Union of Public Employees. (2016). CUPE Equality History Digital Timeline [PowerPoint slides]. Retrieved from http://cupe.ca/cupe-equality-history-digital-timeline
Clogston, J. S. (1991). Reporters' Attitudes Toward and Newspaper Coverage of Persons with Disabilities. Unpublished doctoral dissertation at Michigan State University, Michigan, United States.
Collins, K. (2013, March 17). A message to the well intentioned [Online blog post]. Retrieved from http://kim-collins.tumblr.com/post/45586381856/a-message-to-the-well-intentioned
Devotta, K., Wilton, R., & Yiannakoulias, N. (2013). Representations of disability in the Canadian new media: A decade of change? Disability and Rehabilitation, 35(22), 1859-1868. Dolmage v HMQ (2013) ONSC 6686.
Dolmage. J. (2014). Disability Rhetoric. Syracuse: Syracuse University Press.
Derksen, J. (2014). Not dead yet! Geez. Retrieved from http://www.geezmagazine.org/magazine/article/not-dead-yet/#.UzNAww1jrk8.facebook
Derksen, J. (2014). In the death resistance. Council of Canadians with Disabilities. Retrieved from http://www.ccdonline.ca/en/blog/poem-assisted%20suicide-26March2014
Frazee, C. (2014, March 30). A respectful postscript to Edward Hung’s end-of-life letter. The Saturday Star. Retrieved from http://www.thestar.com/opinion/commentary/2014/03/30/a_respectful_postscript_to_edward_hungs_endoflife_letter.html
Frazee, C. (2014, March 4). Opinion: Bill 52’s legislative limbo offers a time for reflection. The Montreal Gazette. Retrieved from http://www.montrealgazette.com/health/Opinion+Bill+legislative+limbo+offers+time+reflection/9577683/story.html#Comments
Frazee, C. (2000, Sept. 2). Body politics. Saturday Night, 115(7), 40-43.
Fine, M., & Weis, L. (1996). Writing the “wrongs” of fieldwork: Confronting our own research/writing dilemmas in urban ethnographies. Qualitative Inquiry, 2(3), 251-274.
Foucault, M. (1978). The History of Sexuality: Volume 1. Trans. R. Hurley, New York: Random House.
Foucault, M. (2000). The abnormals. In P. Rabinow (Ed.), Michel Foucault: Ethics: Essential
Works of Foucault 1954–1984: Volume 1 (pp. 51-58). London: Penguin Group.
Garland-Thomson, R. (1997). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. New York: Columbia University Press.
Garland-Thomson, R. (2001). Seeing the disabled. In P. Longmore, & L. Umansky (Eds.), The New Disability History: American Perspectives (pp. 335-374). New York: University Press.
Garland-Thomson, R. (2013). Integrating disability, transforming feminist theory. In L. J. Davis (Ed.), The Disability Studies Reader (4th ed.) (pp. 333-354). New York and London: Routledge
Gill, M. (2005). The myth of transition: Contractualizing disability in the sheltered workshop. Disability & Society, 20(6), 613-623.
Global Edmonton. (2013, September 5). News Hour Edmonton Profiles of Courage: Ayden. Retrieved from http://globalnews.ca/video/822616/profiles-of-courage-ayden/
The Globe and Mail. (2014). The Globe and Mail Style Guide. Toronto: Phillip Crawley. Retrieved from http://v1.theglobeandmail.com/servlet/story/STYLEBOOK.20041110.style_904/Stylebook/National/
Haller, B. (2010). Representing disability in an Ableist World: Essays on Mass Media. Louisville: Advocado Press.
Henderson, H. (2015). Authors: Helen Henderson. The Toronto Star. Retrieved from http://www.thestar.com/authors.henderson_helen.html
Hockenberry, J. (1995). Moving Violations. New York: Hyperion.
Horkheimer, M., & Adorno, T. (1972). The culture industry: Enlightenment as mass
deception. In Horkheimer, M., & Adorno, T. (Eds.), Dialectic of Enlightenment (pp. 94-136). [Trans. of Dialektik der Aufklärung, orig. Philosophische Fragmente].
Horkheimer, M., & Adorno, T. (1987/2002). The Culture Industry: Enlightenment as mass deception. In Horkheimer, M., & Adorno, T. (Eds.), Dialectic of Enlightenment: Philosophical Fragments (pp. 94-136). [Trans. from Vol. 5, Gesammelte Schriften: Dialektik der Aufklärung und Schriften 1940-1950, Ed. G. Schmid Noerr, 1987, by S. Fischer: Verlag GmbH, Frankfurst am Main]. Transl. Board of Trustees of the Leland Stanford Junior University.
Ignagni, E., & Church, K. (2009). One more reason to look away? Ties and tensions between arts-informed inquiry and disability studies. In A. Cole, & J. G. Knowles (Eds.), Handbook of the Arts in Qualitative Social Science Research (pp. 625-638). Thousand Oaks: Sage Publications.
Jaffer, A. (2009). What kind of life did Tracy have? Journal of Developmental Disabilities, 15(1), 65-66.
Johner, R. (2013). Disability and poverty: Stories that resist attitudinal barriers to inclusion. Canadian Journal of Disability Studies, 2(3), 31-54.
Jones, C. (2012). Interview with Ray Cohen, founder of the Canadian Abilities Foundation. Canadian Journal of Disability Studies 2(2), 1-9.
Jones, C. (2014). ‘Why this story over a hundred other stories of the day?’: Five journalists’ backstories about writing disability in Toronto. Disability & Society, 29(8), 1206-1220.
Kafka, B. (2003). Disability rights vs. workers’ rights: A different perspective. ZNet. Retrieved from http://zcomm.org/znetarticle/disability-rights-vs-workers-rights-a different-perspective-by-bob-kafka/
Luterbach, J. Phone interview (personal communication), July 22, 2013.
Lewin, K., & Gold, M. (1999). The Complete Social Scientist: A Kurt Lewin Reader. Washington, DC: American Psychological Association.
Linton, S. (1993). Reassigning meaning. In S. Linton (Ed.), Claiming Disability: Knowledge and Identity (pp. 8-33). New York: Rutgers University Press.
Longmore, P. (1987). Screening stereotypes: Images of disabled people in television and motion pictures. In A. Gartener, & T. Joe (Eds.), Images of the Disabled, Disabling images (pp. 65-78). New York: Praeger.
Malacrida, C. (2015). A Special Hell: Institutional Life in Alberta’s Eugenic Years. Toronto: University of Toronto Press.
McGuire, A. (2016). War on Autism: On the Cultural Logic of Normative Violence. Ann Arbor: University of Michigan Press.
Mitchell, D., & Snyder, S. (2001). Narrative Prosthesis: Disability and the Dependencies of Discourse. Michigan: University of Michigan Press.
Muir v Alberta (1996) ABQB 7287.
Olson, D. R. (2009). The history of writing. In R. Beard, D. Myhill, J. Riley, & M. Nystrand (Eds.), The Sage Handbook of Writing Development (pp. 6-17). Thousand Oakes: Sage Publications.
Preston, J. (2016). Battle lines drawn: Creative resistance to ableism through online media. In C. Kelly, & M. Orsini (Eds.) Mobilizing Metaphor: Art, Culture, and Disability Activism in Canada (pp. 162-180). Vancouver: UBC Press.
Prince, M. (2012). Canadian disability activism and political ideas: In and between neo-liberalism and social liberalism. Canadian Journal of Disability Studies, 1(1), 1-34.
Richardson, L. (1995). Writing-stories: Co-authoring “the sea monster,” a writing-story. Qualitative Inquiry, 1(2), 189-203.
Richardson, L. (2000). Writing: A method of inquiry. In N. Denzin, & Y. Lincoln (Eds.), Handbook of Qualitative Research (2nd ed.) (pp. 959-978). Thousand Oaks: Sage Publications.
Richardson, L., & Adams St. Pierre, E. (2005). Writing: A method of inquiry. In N. Denzin, & Y. Lincoln (Eds.), Handbook of Qualitative Research (3rd ed.) (pp. 923-948). Thousand Oaks: Sage Publications.
Richardson, L., & Adams St. Pierre, E. (2014). A brief and personal history of qualitative research. Journal of Curriculum Theorizing, 30(2), 2-19.
Rodan, D., Ellis, K., & Lebeck, P. (2014). Disability, Obesity and Ageing: Popular Media Identification. Surrey: Ashgate Publishing.
Sgroi, M. (2016). ‘I should at least be given a chance to try’: The experience of media workers with disabilities in the United States during postsecondary education and early career. Disability & Society, 31(1), 64-83.
Shapiro, J. (1994). Disability policy and the media: A stealth civil rights movement bypasses the press and defies conventional wisdom. Policy Studies Journal, 22(1), 123-132.
Sheir, M., Graham, J., & Jones, M. (2009). Barriers to employment as experienced by disabled people: A qualitative analysis in Calgary and Regina, Canada. Disability & Society, 24(1), 63-75.
Stiker, H. (1999). A History of Disability. Ann Arbor: University of Michigan Press.
Snyder, S., & Mitchell, D. (2006). Cultural Locations of Disability. Chicago: University of Chicago Press.
Snyder, S., Mitchell, D. & Ware, L. (2014). “[Every] child left behind: Curricular cripistemologies and the crip/queer art of failure.” Journal of Literary and Cultural Disability Studies, 8(3), 295-313.
Taylor, S. (2004). The right not to work: Power and disability. Monthly Review, 55(10). Retrieved from http://monthlyreview.org/2004/03/01/the-right-not-to-work-power-and-disability
Sackatchewan Education Act, 1995, S.S. c. E-0.2.
The Canadian Press. (2014, August 14). Closure date for Moose Jaw’s Valley View Centre pushed back to 2018. CBC News. Retrieved from http://www.cbc.ca/news/canada/saskatchewan/closure-date-for-moose-jaw-s-valley-view-centre-pushed-back-to-2018-1.2736635
Lewin, B. (Director). (2012). The Sessions [Motion Picture]. United States: Fox Searchlight Films.
Titchkosky, T. (2008). Reading & Writing Disability Differently: The Textured Life of Embodiment. Toronto: University of Toronto Press.
Titchkosky, T. (2012). Review: Truchan-Tataryn, Maria. (In)visible images: Seeing disability in Canadian literature, 1823-1974. Canadian Journal of Disability Studies, 1(2), 112-114.
Truchan-Tataryn, M. (2003). Life sentences of death? Disability in Canadian literature.
In J. Gifford, & G. Zezulko-Maillouz (Eds.), Culture and the State: Disability Studies and Indigenous Studies (pp. 207-218). Saskatoon: University of Saskatchewan.
Varey, J. (2014). The inclusion of adults with intellectual disabilities (ID): A study of community based group home service providers in Saskatchewan. Canadian Journal of Disability Studies, 3(2), 121-137.
Sharrock, T. (Director). (2016) Me Before You [Motion Picture]. United States and United Kingdom: New Line Cinema.
Wong-Ward, I. (Personal communication), September 2010.
Zhang, L., & Haller, B. (2013). Consuming image: How mass media impact the identity of people with disabilities. Communication Quarterly, 61(3), 319-334.
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