Deformography: An Autoethnography of Syndactyly
The author of this paper uses autoethnography to explore some of her experiences being born with the congenital malformation syndactyly, calling the process her deformography. She engages in this process for two reasons: a) to move syndactyly out of the medical literature, and b) as a step in a self-empowering process towards acceptance. In so doing, the paper explores social ideologies of difference that have affected her in her lifetime, with particular focus on Ancient Sparta and Nazi Germany. The paper concludes with the author’s realization that although she understands how difference “works” on a cognitive level, she has more to do on her healing journey.