https://cjds.uwaterloo.ca/index.php/cjds/issue/feed Canadian Journal of Disability Studies 2019-10-30T14:53:07-04:00 Jay Dolmage, PhD CJDSeditor@uwaterloo.ca Open Journal Systems <p>The Canadian Journal of Disability Studies publishes peer-reviewed original articles that advance research in the multidisciplinary, international field of disability studies.</p> <p>All content is totally open access.&nbsp;The CJDS never charges any processing or publication fees, and is free and open to the public. This ensures that scholarship in the CJDS reaches the broadest possible audience, with no barriers for authors, institutions, or readers. The journal also advocates for Open Accessibility, ensuring that all content is fully accessible.<br><br>The journal embraces a wide range of methodologies and perspectives, values collaborative and cross-disciplinary work, community partnership, and creative approaches to scholarship.<br><br>Research in the Canadian Journal of Disability Studies will be of interest to scholars and students from across all academic disciplines, as well as anyone involved in disability arts, advocacy, community organization or policy.&nbsp; The journal foregrounds a critical disability studies perspective, committed to disability rights.</p> <p>Please consider registering as a reader to receive notifications and announcements.</p> https://cjds.uwaterloo.ca/index.php/cjds/article/view/560 Knowledge Translation from Disability Studies to Policy Makers: Literature Review and Expert Consultation 2019-10-15T16:16:52-04:00 Mary Ann McColl mccollm@queensu.ca Aryeh Gitterman mccollm@queensu.ca Dan Goldowitz mccollm@queensu.ca <p>Disability policy is currently receiving more attention than it has in the past 35 years.&nbsp; How have disability studies researchers participated in these processes, providing the results of their research to ensure the best possible evidence-based policy?&nbsp; This paper reviews the literature on barriers to knowledge translation from disability studies researchers to policy-makers, as well as the incorporating the recommendations of a high-level expert panel of experienced policy makers in disability portfolios.&nbsp; The principal barriers identified are: awareness of the policy process, awareness of government’s agenda, timing of information, format of the message, and commitment to the relationship.&nbsp; The panel offers five recommendations to address these barriers.</p> 2019-10-15T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/565 Policy or Pathologization?: Questions into the Rhetoric of Inclusion and Acceptance in Schools 2019-10-30T14:53:07-04:00 Jillian Stagg jillian.stagg@mail.utoronto.ca <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>In the wake of a study released by the Public Health Agency of Canada in 2012 that focused on student belonging, safety, and inclusion in schools, the Ontario government introduced the Accepting Schools Act (Bill 13), which was successively passed into law that year. As an amendment to the longstanding Education Act, Bill 13 was a turning point for discourse surrounding safe and accepting schools, due to a specific focus on bullying, discrimination, and inclusion in fostering positive school climates. Following the recurrent rhetoric of inclusion, however, Bill 13 – as both policy and practice – failed to locate and identify discrimination and exclusion as both systemic and structural problems. In doing so, Bill 13, and similar inclusive policies to follow, merely advocated for the inclusion of marginalized and “at-risk” students, while continuing to cite and valorize heteronormative, ableist, and colonial values as the benchmark of inclusion and belonging. Using the insights of critical pedagogy, queer studies, and critical disability studies, this paper aims to extend the dialogue of inclusion beyond the student “at-risk,” and instead, examine the ways that policy rhetoric upholds hostile and oppressive school climates. Thus, this paper argues for a critical reexamination of the ways in which colonial, ableist, and heterosexist standards of normality manifest in inclusive discourse and practice. In doing so, schools, policy-makers, students, and staff can move beyond damaging discourses that hinder the positive development of queer, two-spirit, trans, and questioning students, and in particular, students whose queerness intersects with their race, class, and/or disability.</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/566 Disability Orientation and Regulatory Focus in the Assistive Technology Context: A Study of Deaf and Hard-of-Hearing Consumers 2019-10-30T14:53:07-04:00 Michael Janger michael.janger@gallaudet.edu <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>With people with disabilities (PwDs) representing 15% of the United States population, the PwD market demonstrates significant potential as a lucrative target market for businesses. Yet, empirical data is lacking on consumer behaviour among PwDs considering assistive technology products to enhance accessibility. The purpose of this study is to understand the purchase decision process through the lens of a major theory of consumer behaviour, regulatory focus. 171 deaf and hard-of-hearing individuals primarily aged 18-29 were surveyed on two empirically tested scales that measure regulatory focus and disability orientation. This survey included the viewing of a fictional advertisement about an assistive technology product. The findings supported the evidence of a relationship between disability orientation and regulatory focus. A sense of exclusion, social model acceptance, and disability pride were statistically significant predictors of either or both regulatory focus orientations with regard to assistive technology products. Also, whether the subject did/did not have a second disability was partly determinative of prevention focus. Segmentation by disability identity and regulatory focus is suggested. The findings are an important contribution to the established literature on regulatory focus, and fill a major empirical gap in marketing literature for the PwD market. The limitations to this study include the continuing theoretical evolution of disability orientation, and the limitation of the sample to a single disability type (deafness) within a single age group. Similar studies on other disability types could better establish the findings of this study.</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/567 Critical Reflections on the Process of Developing a Resource Manual for Service Providers Working with Immigrants & Refugees with Disabilities 2019-10-28T11:07:37-04:00 Kaltrina Kusari Kaltrina.kusari@ucalgary.ca Yahya El-Lahib yellahib@ucalgary.ca Natalie Spagnuolo natalie.spagnuolo@gmail.com <div class="page" title="Page 2"> <div class="section"> <div class="layoutArea"> <div class="column"> <p>This paper presents critical reflections on the process of developing a resource manual for service providers who work with immigrants/refugees with disabilities. The development of this manual gave us insight into existing programs which address the intersection between immigration and disability, as well as the paradigms that guide services which target immigrants/ refugees with disabilities. We approached the manual through a postcolonial disability framework which facilitated a critical examination of the operation of ableist and neocolonial discourses within and through settlement practices. The main findings highlight the “siloed” nature of service delivery for immigrants/refugees with disabilities. Findings also illustrate how relevant provincial strategies do not address the intersection between immigration and disability, but rather focus on using immigration to reach other provincial targets. These findings add to the body of existing, albeit scarce, literature which focuses on the immigration-disability nexus and provide important implications for policymaking and service delivery for a largely hidden population of immigrants in Canada.</p> </div> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/568 Our Madness is Invisible: Notes on Being Privileged (Non)Disabled Researchers 2019-10-30T14:53:07-04:00 Matthew S. Johnston MatthewJohnston3@cmail.carleton.ca Matthew D. Sanscartier MatthewJohnston3@cmail.carleton.ca <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>This autoethnographic piece traces how two researchers continually negotiate their privileges, successes, insecurities, challenges, and (non)disabled identities in the neoliberal academy. We interrogate the co-constitution of identity of (1) a mentally disabled researcher and graduate student who researches madness in the midst of dealing with his own struggles maintaining a professional identity and repairing a fractured self; (2) a non-disabled doctoral student who has found academic success, but has had his life stalled multiple times by significant mental health challenges. We propose the concept of the privileged (non)disabled self to capture how researchers become entangled in permanent or temporal disabilities while simultaneously negotiating their accomplishments. We encourage researchers not to sideline their reflections on privilege and disability as irrelevant, but continually examine their identities in order to reveal potential avenues for emancipation.</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/569 Protests of People with Disabilities as Examples of Fledgling Disability Activism in Poland 2019-10-28T11:16:32-04:00 Pawel Kubicki pkubick@sgh.waw.pl <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>The article outlines the causes, course and consequences of the protests of people with disabilities and their carers that took place in Poland in 2014 and 2018 respectively. Said protests took a form of occupation of the Polish parliament building. This was intended to draw attention to the considerable difficulties people with disabilities face, as well as to advocate for raising social benefits. We also describe the process of people with disabilities gaining subjectivity and the role of non-governmental organisations and various experts, including but not limited to academics. Moreover, the article demonstrates circumstances to be considered with regards to disability activism. We argue that the systemic transformation that Poland underwent in 1989 and the following years pertained chiefly to matters relating to improving the country's economic situation. This led to civic matters being treated as less of a priority. Subsequently, people with disabilities became one of the marginalised groups. Their incomplete emancipation has hindered the proper application of the principles of the CRPD. The article was co-written by persons with disabilities, who draw on their experiences, and their non-disabled colleagues in academia who are actively engaged in supporting disability activism.</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/571 Review of Unspoken (2017) 2019-10-28T11:50:13-04:00 Rua M. Williams williams2020@ufl.edu <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>‘Unspoken’ is a point-of-view documentary directed by Emma Zurcher-Long, Geneva Peschka, and Julia Ngeow. The film explores Emma’s relationship with spoken and written language, and challenges viewers to disrupt their preconceptions about autism and autistic people. Emma, a 14-year-old Autistic girl with “unreliable speech”, engages us not just through typed words, but through the artistry of film-making and music - inviting us with all the senses we might have to access the fullness of her voice debut.</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement## https://cjds.uwaterloo.ca/index.php/cjds/article/view/570 Review of Burghardt, Madeline (2018), Broken: Institutions, Families, and the Construction of Intellectual Disability 2019-10-28T11:48:07-04:00 Chelsea Temple Jones chelsea.jones@uregina.ca <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>Madeline Burghardt’s Broken: Institutions, Families, and the Construction of Intellectual Disability offers up intellectual disability as a malleable cultural construction that is eligible for reflection, specifically by survivors of some of Ontario’s most insidious institutions. Burghardt explains the ongoing process of institutionalization by tracking cultural milestones. From the rise of disability “experts” in a pre-WWII era to the 2010 class-action lawsuit launched against the provincial government, the research centres survivors’ interview-based testimony. Other voices emerge, too, including those of siblings and parents. All in all, Burghardt highlights 36 interviews from 20 different families and four institutional staffers. The book is a time capsule of life under a neglectful directive to institutionalize, which, decades later, pivoted into a directive to deinstitutionalize (157).</p> </div> </div> </div> 2019-10-28T00:00:00-04:00 ##submission.copyrightStatement##