Canadian Journal of Disability Studies https://cjds.uwaterloo.ca/index.php/cjds <p>The Canadian Journal of Disability Studies publishes peer-reviewed original articles that advance research in the multidisciplinary, international field of disability studies.</p> <p>All content is totally open access.&nbsp;The CJDS never charges any processing or publication fees, and is free and open to the public. This ensures that scholarship in the CJDS reaches the broadest possible audience, with no barriers for authors, institutions, or readers. The journal also advocates for Open Accessibility, ensuring that all content is fully accessible.<br><br>The journal embraces a wide range of methodologies and perspectives, values collaborative and cross-disciplinary work, community partnership, and creative approaches to scholarship.<br><br>Research in the Canadian Journal of Disability Studies will be of interest to scholars and students from across all academic disciplines, as well as anyone involved in disability arts, advocacy, community organization or policy.&nbsp; The journal foregrounds a critical disability studies perspective, committed to disability rights.</p> <p>Please consider registering as a reader to receive notifications and announcements.</p> CDSA-ACEI en-US Canadian Journal of Disability Studies 1929-9192 <p>There are no article processing or submission charges for CJDS authors.</p><p>Author(s) are not required to assign their copyright in and to their article to the <em>Canadian Journal of Disability Studies</em>. Instead, The <em>CJDS</em> asks for one-time rights to print this original work.</p><p>All articles in the journal are assigned a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) license. See: https://creativecommons.org/licenses/by-nc-nd/4.0/</p><p><img src="/public/site/images/jdolmage/88x31.png" alt="" /></p><p>Authors are asked to contact the journal Editor if they wish to post the article on any website; translate or authorize a translation of the article; copy or otherwise reproduce the article, in any format, beyond what is permitted under Canadian copyright law, or authorize others to do so; copy or otherwise reproduce portions of the article, including tables and figures, beyond what is permitted under Canadian copyright law, or authorize others to do so.</p><p>Contacting the Editor will simply allow us to track the use and distribution of your article.  We encourage use for non-commercial, educational purposes. </p><p>Authors must provide proof of permission clearance prior to the publication of their work if they are including images or other materials that are not their own.  Keep in mind that such clearance can at times be costly, and often takes time.  The journal editor can often work with you to seek permissions if you need information, advice or assistance.</p> Complexities of Survival and Resilience https://cjds.uwaterloo.ca/index.php/cjds/article/view/519 <p>By mapping tacit and contested assumptions about adversity, works in this issue shift understandings of survival and resilience from individual assets to spaces of solidarity, collective action, culture-building and community identity. Spanning diverse institutional, geographic, community and subjective sites, authors chart new terrains for knowing, representing and experiencing survivals, ruptures and resiliencies.</p> Katie Aubrecht Nancy La Monica ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 1 3 10.15353/cjds.v8i4.519 Do You Know Why You’re Here? https://cjds.uwaterloo.ca/index.php/cjds/article/view/520 <p>Poetry</p> nancy viva davis halifax ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 4 5 Caterpillar; Autumn Leaves; Daffodils; Last Day https://cjds.uwaterloo.ca/index.php/cjds/article/view/521 <p>Poetry</p> Andrea Nicki ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 6 7 Storytelling Beyond the Psychiatric Gaze https://cjds.uwaterloo.ca/index.php/cjds/article/view/522 <p>This paper explores the politics of resilience and recovery narratives by bringing critical ethnography and auto-ethnographic methods to bear on my own experiences with storytelling distress in different contexts. Inviting people with lived experience to share their stories is now common practice in education, mental health, and broader community venues. Yet even when the intent of the stories shared are to offer systemic critique of mental health epistemes, it is difficult to hear such stories beyond the psychiatric gaze. I argue that individual storytelling practices now get processed through resiliency and recovery metanarratives that continue to position both the problem and its potential solution at the level of individual bodies. By offering an account of my own experiences of storytelling, I explore the limits, risks, and productive functions of this practice. This includes how such narratives, in accumulation, can reify conceptions of the resilient and recovered subject and thus help solidify mental health truth regimes.</p> Jijian Voronka ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 8 30 Including Our Self In Struggle https://cjds.uwaterloo.ca/index.php/cjds/article/view/523 <p>This article takes as its starting point the author’s personal perspective and long term personal experience as survivor and activist/researcher to explore the ways in which the alliance of neo-liberal ideology and the psychiatric system has resisted the impact of mental health service users’/survivors’ activism and instead sought to co-opt and subvert its language, ideas and initiatives. Drawing on the author’s perspective, it looks first at how this has happened in relation to the language of mental health, exploring specific terminology. Then it examines how this has happened in relation to key ideas associated with survivors’ collective action, including self-management, peer support and recovery. It show how ‘our’ ideas have been reconstituted to serve neo-liberal ideological goals. Thirdly it looks at how survivors’ innovations have been obstructed and taken over instead by the dominant bio-medical paradigm. Finally it traces the way in which survivor knowledge has similarly been obstructed and appropriated. The article ends with discussion of ‘two beacons of hope’; the emergence of Mad Studies and ‘Gap-mending’ which offer the possibility of challenging neo-liberal dominance and emphasises the need to support and safeguard these developing opportunities.</p> Peter Beresford ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 31 59 Brain Injury Survivors: Impairment, Identity and Neoliberalism https://cjds.uwaterloo.ca/index.php/cjds/article/view/524 <p>This paper reflects on my decades of activism and scholarly work with brain injury survivors, highlighting some of the challenges that survivors experience, and exploring the power dynamics associated with the ‘survivor’ identity.&nbsp; It explores the ‘survivor’ discourse/identity which has been widely adopted by people who have sustained a Traumatic Brain Injury (TBI) in the context of embodied cognitive changes, the dominant view of disability as a personal tragedy, and the wider political context of neoliberalism. The key argument is that the survivor identity adopted by many people with brain injuries simultaneously supports and challenges neoliberalism. The paper involves both autobiographical reflections and the results of my political involvement and research with other survivors.</p> Mark Sherry ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 60 83 Resistance is Resilience https://cjds.uwaterloo.ca/index.php/cjds/article/view/525 <p>Breathing, surviving, living, finding and forging our own meaning, acting in our own lives, finding our way to live through each day is survival, is resistance, is resilience, is re-whatever you want it to be because it is yours.</p> <p>And, with every act of resisting, we become more resilient and, in time, and we find ourselves connecting with others similarly engaged: struggling, learning and sharing experiences with each other as equals.&nbsp; So, our individual resistance-resilience becomes, naturally, organically, messily, something of a collective survival too.</p> Kevin Healey ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 84 98 Resilience Governance https://cjds.uwaterloo.ca/index.php/cjds/article/view/526 <p>Resilience is a concept employed within an increasing scope including ecology, security, social sciences and human psychology. It is applied to various social groups including disabled people. At the same time there are numerous critiques within and outside of the disability community of how resilience is conceptualized and operationalized. The media is a tool used to inform the public and to shape public discourses. Many discourses are seen to be in need of governance actions such as science and technology or global health including the resilience discourse. Our study contributes to the discussions around resilience and disabled people in two ways. First we add qualitative data on the narrative of resilience in relation to disabled people in Canadian newspapers. Our findings reveal very little mentioning of disabled people within the newspapers covered whereby the nature of the coverage exhibits many of the facets for which the resilience discourse is critiqued within and outside of the disability community. Secondly we use a governance lens to analyze the existing governance of resilience discourse to ascertain whether a governance of resilience discourse might be a place for the disability community to shape resilience discourses. We suggest that the existing governance of resilience discourse has to change substantially, to be able to govern resilience discourses in a way that prevents negative impacts of resilience discourses on disabled people. Given the premise of governance as used in other discourses disabled people could lead to a positive change by influencing the resilience governance discourse.</p> Nicole Mfoafo-M’Carthy Gregor Wolbring ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 99 135 Living with Herbert: Mediating Survival and Resilience https://cjds.uwaterloo.ca/index.php/cjds/article/view/527 <p>In my second year of my doctoral program I was struck by a debilitating bout of vertigo. Not certain of what was happening or why my body suddenly seemed to be in a spinning room that no one else was experiencing, I consulted trusted family and friends in the medical field for an explanation. Most of my friends dismissed my concern as the stress of a new school year or just the circumstances that befall someone who has always been clumsy. I, however, was not swayed in my concern and paying attention to the material realities of my body, I went to the doctor. Over the next several weeks I went from specialist to specialist until an MRI was ordered and a cause was identified. A large benign brain tumor was found, growing off of my hearing and balance nerves and pushing against my brain stem. I was told that though the tumor was benign, it had grown larger than the space available to it, that I was losing my hearing and balance and without treatment I would most certainly die in a few years because of the way the tumor was growing in the space my brainstem required.</p> Samira Rajabi ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 136 155 Diaspora: Dislocation and its Resentment, or, the Impossible Dialogue of “Safe Space" https://cjds.uwaterloo.ca/index.php/cjds/article/view/528 <p>I’m lost. I’m confused. I’m frustrated, even angered. Sometimes I’m told one thing; otherwise I’m expecting another. I’m at a distance of so much, looking on or over, betwixt and between, under, cross-, multi-, trans-, poly-… What is intra-, if not supra-? Is it solitude? Is that enough? <em>Enough! </em>I’ve had enough. Click. I close the window. My pupils dilate, condensing black—a heavy darkness, heart quiver, cold hands, eyes shut.</p> Essya M. Nabbali ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 156 168 “Like Bananas with Brown Spots” https://cjds.uwaterloo.ca/index.php/cjds/article/view/529 <p>Employing an analytical autoethnographic methodology, this paper examines how the polysemic meanings and punctuated character of epilepsy produces social and corporeal vulnerabilities in an Indian childhood. The paper further establishes the importance of the family in influencing individual perceptions and constructions of chronic illness as well as in building resilience or increasing vulnerabilities. In examining the process of research, this paper also makes an argument that disabled researchers in the field can become vulnerable in multivalent ways but also argues that the act of disclosure of epileptic/disabled identities during the research process can become central to building community and resilience. This paper also complicates the often North-centric narrative of disability studies and underlines the importance of social contexts around individual categories of disability or chronic illness.</p> Aparna Nair ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 169 194 Whose Disability (Studies)? https://cjds.uwaterloo.ca/index.php/cjds/article/view/530 <p>This article is part of a larger inquiry into the production of disabled bodies due to violence. I examine processes of disablement in the global south, namely Iran and Iraqi Kurdistan, by wars launched and nurtured by both the local nation-states in the Middle East as well as the global north - the United States, Russia, and Western Europe. Utilizing a dialectical and historical materialist approach, I studied the Iran-Iraq war, the longest war of the 20<sup>th</sup> century. I explore how the disablement of global southern bodies in imperialist and nationalist wars is persistently naturalized – that is, attributed to the natural state of affairs in those regions, with the inevitable consequence that they cannot be connected to the violence of ongoing global and regional imperialism. This paper briefly touches upon the theoretical framework and methodology utilized to conduct this research, as well as the “problem” of disability in Iran. Subsequently, it goes on to extensively discuss the living conditions of the surviving Iranian veterans and surviving civilians of the Iran-Iraq war told through their own resilient voices. The veterans’ narratives expose their post-war experiences, including poverty, unemployment, inadequate medical-care, lack of medication due to the U.S.-imposed economic sanctions, and the presence of a dysfunctional disability-measurement system employed by the Iranian state. As a survivor of this war myself, I invite the reader to bear witness to how the violence of imperialism and nationalism not only renders people disabled, but also fetishizes their disablement by masking/mystifying the socio-political and economic relations that mediate the violent processes that render people disabled. By focusing on the veterans’ actual living conditions, this paper seeks to defetishize disablement, shifting the narrative of disabled veterans and civilians from tales of terrorism, heroism, living martyrdom, and patriotism, towards recognition of <em>disability</em> of/in human beings in need of care and support.</p> Sona Kazemi ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 195 226 Absence and Epidemic https://cjds.uwaterloo.ca/index.php/cjds/article/view/531 <p>This paper contemplates the absence of Indigenous perspectives within autism discourse in Canada, despite increasing concern and surveillance over a growing autism ‘epidemic.’ I posit that the simultaneous production of a fetal alcohol spectrum disorder (FASD) ‘epidemic’ among Indigenous populations contributes to this absence. Taking a genealogical approach to the emergence of FASD as a diagnostic framework, I situate the FASD ‘epidemic’ and subsequent prevention campaigns within a lineage of biopolitical strategies aimed at limiting the reproductive agency of Indigenous women. I argue that this phenomenon has two main consequences: first, the erasure of Indigenous autistics and a homogenization of Indigenous neurodiversity; and second, I claim that the association of FASD with Indigeneity converts the violent outcomes of settler colonialism into an embodied pathology, working to justify ongoing dispossession of land and resources from Indigenous people.</p> Caleigh Estelle Inman ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 227 261 On Survival and Education: An Academic’s Perspective on Disability https://cjds.uwaterloo.ca/index.php/cjds/article/view/532 <p>When illness and disability strike, it can seem as though one’s very being is threatened. We tend to consider illness a temporary situation, a phase, a phase that will be done with, sooner or later, and the victim of the attack will be rectified, and will survive it. But in chronic illness, there is a gap, a missing piece that cannot be found, despite all attempts. This is not necessarily a loss, as to claim that there is a loss falls into dangerous territory of positing a once complete or whole body and/or self. The losses are not due to a changing body, but rather discriminatory disablement by society’s understandings of disability. When bodies begin to falter, painful experiences of embodiment and how we experience the world begin to emerge. But to survive is to live through, live with, or live without something. To survive is to also be resilient to any losses. To be a survivor is to have been on the threshold of non-surviving, to have considered giving up, letting go – to allow for a break, a rupture from resilience.</p> Shahd Alshammari ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 262 270 The ‘Nothing But’ https://cjds.uwaterloo.ca/index.php/cjds/article/view/535 <p>This paper shares findings from a qualitative study on university student mental health and illness that included digitally recorded interviews with university student services and programs professionals and staff at a Canadian university. Transcripts were thematically coded and analyzed using a disability studies informed interpretive sociological approach. Four key themes emerged: <em>dwelling with disclosure</em>, <em>being open to the ‘nothing but’, understanding oneself as ‘not a counselor’, and coming to terms with the reality that under neoliberalism ‘we all fall’ </em>Two key insights also emerged from the analysis: 1) Access to university-based programs and services is shaped by assumptions about productivity and reputation; 2) Psychiatric knowledge and expertise influences and informs how university student services staff understand and enact their roles within the university system. This paper considers how university-wide productivity-oriented psy-knowledge and practices organize and authorize what one participant described as a ‘hidden curriculum’ of academic success. This hidden curriculum manifests in the form of a referral-based resiliency (govern)mentality in university student service provision. It closes with a reflection on the transformative potential of adopting a “critically maladaptive” (McLaren, 2010, p. 504) approach that is attentive to alterity in university-based student services professional perspectives which appears in the form of a thoughtful<em> “but…</em>”.</p> Katie Aubrecht ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 271 292 Designing Access Together: Surviving the Demand for Resilience https://cjds.uwaterloo.ca/index.php/cjds/article/view/536 <p>Together we engaged in a project to co-design and co-create a fictional near-future world that would enable us to interrogate our present techno-social dilemmas.&nbsp; Accessibility was central to our workshop for the way that access is always central to enacting crip, mad, Deaf, and spoonie<a href="#_ftn1" name="_ftnref1"><sup>[1]</sup></a> communities.&nbsp; Without access, we cannot meet, discuss, share, struggle, fight, dismantle or create. Crucially, access was tied to our desire to co-create crip near-futures.</p> <p>&nbsp;</p> <p><a href="#_ftnref1" name="_ftn1"><sup>[1]</sup></a> The term spoonie refers to those who live with chronic conditions. Miserandino, C. (n.d.). Retrieved from: <a href="https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/">https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/</a></p> <p>&nbsp;</p> Esther Ignagni Eliza Chandler Kim Collins Andy Darby Kirsty Liddiard ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 293 320 Navigating the Terrain of Dis/Ability https://cjds.uwaterloo.ca/index.php/cjds/article/view/538 <p>Through my lens as an adult educator with non-apparent dis/abilities, this paper has been constructed as an autoethnographic cartography in the lived experience of a dis/ability paradigm.&nbsp; Like a navigational pelorus used to sustain a vessel’s bearing at sea, the relative fluidity of my dis/abled identity, lost and found, has been charted against encounters and relapses of stroke and mental illness.&nbsp; Drawing from personal dis/ability narratives, I illustrate how I captured and studied the familiar yet unaccustomed geography of my body’s dis/abling experiences.&nbsp; I describe how the use of visually captivating, artistic underwater photographs of feminine bodies—strong—sensual—alive, and reminiscent of my embodied experiences,&nbsp; serve not only as visual representations of my dis/ability, but as entry points into the messy process of textualizing dis/ability experiences.</p> Susan Docherty-Skippen ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 321 345 Water of the World https://cjds.uwaterloo.ca/index.php/cjds/article/view/540 Elaine Stewart ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 346 357 Reimagined Story https://cjds.uwaterloo.ca/index.php/cjds/article/view/541 <p>Commentary on&nbsp;the <em>Bodies in Translation: Age and Creativity</em> exhibit at Mount Saint Vincent University Art Gallery in Halifax.&nbsp;</p> Kelly O'Neil ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 358 375 10.15353/cjds.v8i4.541 Review of Jameel Hampton (2016), "Disability and the Welfare State in Britain: Changes in Perception and Policy 1948-79" https://cjds.uwaterloo.ca/index.php/cjds/article/view/542 <p class="p1"><strong>Jameel Hampton (2016). </strong></p> <p class="p1"><strong>Disability and the welfare state in Britain: Changes in Perception and Policy 1948-79. </strong></p> Fallon Burns ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 376 380 Review of Bonnie Burstow (2017), "The Other Mrs. Smith" https://cjds.uwaterloo.ca/index.php/cjds/article/view/543 <p class="p1"><strong>Bonnie Burstow (2017). </strong></p> <p class="p1"><strong><em>The Other Mrs. Smith</em>. </strong></p> Sona Kazemi ##submission.copyrightStatement## 2019-07-01 2019-07-01 8 4 381 390