Canadian Journal of Disability Studies <p><em><strong></strong></em><strong></strong><strong></strong><strong></strong>The Canadian Journal of Disability Studies publishes peer-reviewed original articles that advance research in the multidisciplinary, international field of disability studies.</p> <p>All content is totally open access.&nbsp;The CJDS never charges any processing or publication fees, and is free and open to the public. This ensures that scholarship in the CJDS reaches the broadest possible audience, with no barriers for authors, institutions, or readers. The journal also advocates for Open Accessibility, ensuring that all content is fully accessible.<br><br>The journal embraces a wide range of methodologies and perspectives, values collaborative and cross-disciplinary work, community partnership, and creative approaches to scholarship.<br><br>Research in the Canadian Journal of Disability Studies will be of interest to scholars and students from across all academic disciplines, as well as anyone involved in disability arts, advocacy, community organization or policy.&nbsp; The journal foregrounds a critical disability studies perspective, committed to disability rights.</p> <p>Please consider registering as a reader to receive notifications and announcements.</p> en-US <p>There are no article processing or submission charges for CJDS authors.</p><p>Author(s) are not required to assign their copyright in and to their article to the <em>Canadian Journal of Disability Studies</em>. Instead, The <em>CJDS</em> asks for one-time rights to print this original work.</p><p>All articles in the journal are assigned a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) license. See:</p><p><img src="/public/site/images/jdolmage/88x31.png" alt="" /></p><p>Authors are asked to contact the journal Editor if they wish to post the article on any website; translate or authorize a translation of the article; copy or otherwise reproduce the article, in any format, beyond what is permitted under Canadian copyright law, or authorize others to do so; copy or otherwise reproduce portions of the article, including tables and figures, beyond what is permitted under Canadian copyright law, or authorize others to do so.</p><p>Contacting the Editor will simply allow us to track the use and distribution of your article.  We encourage use for non-commercial, educational purposes. </p><p>Authors must provide proof of permission clearance prior to the publication of their work if they are including images or other materials that are not their own.  Keep in mind that such clearance can at times be costly, and often takes time.  The journal editor can often work with you to seek permissions if you need information, advice or assistance.</p> (Jay Dolmage, PhD) (Jay Dolmage) Fri, 28 Feb 2020 09:29:11 -0500 OJS 60 Erosion of Social Support for Disabled People in Ontario: An Appraisal of the Ontario Disability Support Program (ODSP) Using a Human Rights Framework <div class="page" title="Page 3"> <div class="layoutArea"> <div class="column"> <p>The Ontario Disability Support Program (ODSP) is a social assistance program offering income and employment supports for disabled people in Ontario, Canada’s most populous province. Since its inception, the ODSP has been critiqued by policy analysts, service providers, and its recipients as flawed, principally in terms of the amount and the range of supports provided. The purpose of this paper is to assess whether the ODSP meets its stated objectives from the perspective of its recipients - an important issue for engendering substantive equality for disabled individuals. The design was a supplementary secondary analysis of data collected from seven focus groups (n=46) related to poverty and social inclusion. The overall theme, the ODSP falls short, was communicated through two types of assessments of inadequacies. The first, labelled “yes, but,” acknowledged the program’s positive intent despite its insufficiencies in services and supports. The second, labelled “no, and,” decisively assessed the ODSP as inadequate with supporting rationale. In exploring extant human rights jurisprudence, we conclude that substantive protection against systemic discrimination for disabled people will not be guaranteed unless human rights legislation truly has paramountcy over all other laws. Human rights tribunals have a mandate, reinforced in international human rights law, to provide remedial remedies to systemic discrimination. Our findings speak directly to the need for human rights tribunals and commissions to mitigate the erosion of rights and opportunities for disabled people.</p> </div> </div> </div> Tracy Smith-Carrier, Phyllis Montgomery, Sharolyn Mossey, Tanya Shute, Cheryl Forchuk, Abraham Rudnick ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Deformography: An Autoethnography of Syndactyly <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>The author of this paper uses autoethnography to explore some of her experiences being born with the congenital malformation syndactyly, calling the process her deformography. She engages in this process for two reasons: a) to move syndactyly out of the medical literature, and b) as a step in a self-empowering process towards acceptance. In so doing, the paper explores social ideologies of difference that have affected her in her lifetime, with particular focus on Ancient Sparta and Nazi Germany. The paper concludes with the author’s realization that although she understands how difference “works” on a cognitive level, she has more to do on her healing journey.</p> </div> </div> </div> Danielle Lorenz ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Disability Barriers in Academia: An Analysis of Disability Accommodation Policies for Faculty at Canadian Universities <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>This article examines disability accommodation policies for faculty at 42 Canadian universities. Although universities in Canada are legally required to accommodate disabled employees, fewer than half of all universities have a written disability accommodation policy available. The search for disability accommodation policies revealed that there is a lack of consistency in policy implementation as well as language and content. The analysis revealed that disability accommodation policies contain overtly medical language and provisions that work to isolate disabled faculty by reinforcing the notion of competency as able-bodiedness and emphasizing the entanglement between disability, health and medicine. This article encourages universities to acknowledge their role in establishing accessible and inclusive workplaces and concludes with recommendations aimed at addressing some of the gaps and inconsistencies in disability accommodation policies.</p> </div> </div> </div> Natasha Saltes ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Crip Theory and Mad Studies: Intersections and Points of Departure <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>The experiences of crip and mad people—as well as the disciplinary homes of crip theory and mad studies—have rarely been brought together in any synthesised manner. In this article, I bring crip theory and mad studies together to explore the similarities, intersections, and points of departure. The article starts by exploring the similar life experiences between crip and mad bodies, including: familial isolation; shame, guilt, and essentialism; stereotypes and discrimination; experiences and rates of violence; the power of diagnostic labels; and, passing and ‘coming out’. The discussion then moves to explore the theoretical overlaps between crip theory and mad studies, including: (strategic) essentialism vs constructionism; opposition to norms; subversion and transgression as political tools; and, the problematisation of binaries. The article then meditates on the question of combining these two schools of thought to help forge a collective politics, and speculates about the political methodologies of cripping and maddening dialogues.</p> </div> </div> </div> Ryan Thorneycroft ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Adaptive Musical Instruments (AMIs): Past, Present, and Future Research Directions <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>We review and discuss the literature related to adaptive musical instruments since 2000, focusing on the use of such instruments with children with disabilities. The aim of this review is to provide a synthesis of perspectives and answer the following questions: How have music technologies, including both software and hardware, been used for children with disabilities and how have they been tested and evaluated? What have been the research questions asked and outcomes evaluated concerning these instruments? The studies reviewed include intervention, narrative and descriptive studies. One observation is that adaptive instrument design and research cuts across many different disciplines including music therapy, education and engineering. We considered articles taking functional and rehabilitation informed perspectives as well as critical disability studies, for which music making is often discussed as a human right independently of potential benefits. We discuss methodological approaches used in these studies, and reports of user’s opinions concerning the use of AMIs. It is worth noting that most uses of AMIs by the population under consideration are highly improvisatory, and so a methodological challenge frequently reported is how can the effectiveness of AMIs be assessed without focusing only on easily measurable outputs? We reveal divisions existing between research focusing on the use of AMIs with precise therapeutic and pedagogic goals in mind, and that interested in more general positive effects of improvised collective creative activity and its role in community building. With this two-fold perspective, we analyse the limitations of current research and derive questions for future directions.</p> </div> </div> </div> Florian Grond, Keiko Shikako-Thomas, Eric Lewis ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Characteristics of Disability Leaders: An Atlantic Canada Profile <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>Leadership in the nonprofit sector including the disability sector has changed with the growth of the neoliberal state with governments downloading their social policy implementation role to civil society actors. The competitive climate disability nonprofits now find themselves in calls into question the leadership and skills required of their leaders. Based on 58 semi-structured interviews, this article develops a profile of Atlantic Canadian disability organization leaders— executive directors and government disability program managers. It argues that existing leadership models insufficiently capture their operating logic and finds disability leaders increasingly transformed into a new entrepreneurial role, which challenges service provision for persons with disabilities.</p> </div> </div> </div> Mario Levesque ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Review of "Was Yosef on the Spectrum," by Samuel J. Levine <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>Samuel Levine’s Was Yosef on the Spectrum: Understanding Joseph Through Tora, Midrash, and Classical Jewish Sources argues that Joseph, son of Jacob and Rachel from the Book of Genesis, was possibly autistic. Diagnosing people retrospectively as autistic raises complex “hermeneutic” or interpretive questions, including the possibility that our selective readings and attributions of recorded histories reveal more about our current concerns than past realities.</p> </div> </div> </div> Majia Nedesan ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 Review of "The Tiger Flu," by Larissa Lai <div class="page" title="Page 2"> <div class="layoutArea"> <div class="column"> <p>Larissa Lai’s The Tiger Flu is a novel set in the Pacific Northwest after an ecological disaster. What humans are left, experience waves of epidemic flu. In the farthest quarantine rings outside Saltwater City is the Grist Village, populated by a group of humans that were mutated generations ago and were exiled from Saltwater City.</p> </div> </div> </div> Niamh Timmons ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500 “Hap Walk”: A Reading of Living a Feminist Life by Sara Ahmed and “Docile Bodies” in Discipline and Punish by Michel Foucault <div class="page" title="Page 3"> <div class="layoutArea"> <div class="column"> <p>This paper grew from the imagining that Sara Ahmed and Michel Foucault, both influential scholars in my ever-developing understanding of the world, met face-to-face one ordinary day, discussed their ideas, responded to each other’s queries, reflected on historical and ongoing social injustices, and shared hopeful imaginings for the future. In this imaginary account, through the form of dialogues, I compare, contrast, and examine concepts in Foucault’s and Ahmed’s works—specifically, the chapter “Docile Bodies” in Discipline and Punish, published in 1977, and the book Living a Feminist Life, published 40 years later in 2017.1 Following Ahmed, I use path, walls, and tables as both metaphors and material effects of disciplinary power to link theorizations from the two texts regarding the embodiment of discipline, through which white, capitalist, and heteropatriarchal norms persist. Further, I ask questions of Foucault’s text about the seeming invisibility of women and disabled people in its discussion of docile bodies and disciplinary power and echo other feminist scholars in arguing that it is through the perspectives and experiences of those who have been cast out of belonging and rendered invisible that we may find the means to expose the most cemented and hidden structures and techniques of domination and to imagine forms of resistance and subversions that point to a different future. For the purpose of clarity, direct quotes from Ahmed’s and Foucault’s texts are italicized within the dialogues, accompanied by in-text citations.</p> </div> </div> </div> Patricia Ki ##submission.copyrightStatement## Thu, 27 Feb 2020 00:00:00 -0500