Mobilisation Des Ressources De Soutien Formel Des Parents Immigrants D’un Enfant En Situation De Handicap

Carine Bétrisey, Sylvie Tétreault, Geneviève Piérart, Chantal Desmarais

Abstract


Plus vulnérables que d’autres personnes, les parents immigrants d’un enfant en situation de handicap possèdent des ressources altérées par leur parcours migratoire. Souvent, ils mobilisent davantage de soutien formel afin de faire face aux événements déstabilisants du quotidien. La présente étude vise à explorer cette situation avec huit entrevues semi-dirigées menées auprès de parents immigrants dans la province de Québec. L’analyse exploratoire des propos des participants met en évidence sept principales sources de stress expliquant l’utilisation de stratégies d’aide formelle. Des besoins non comblés sont également ressortis. Un modèle explicatif original illustrant ce contexte parental particulier est proposé.


Keywords


immigration, situation de handicap, famille, soutien.

Full Text:

PDF HTML

References


Abbott, D. et Jessiman, P. (2015). "It’s afforded us a huge flexibility": The impact of "Disabled Children’s Access to Childcare pilots" on families with a disabled child in England. Community, Work and Family, 17(4), 456-466.

Almasri, N. A., O’Neil, M. et Palisano, R. J. (2014). Predictors of needs for families of children with cerebral palsy. Disability and Rehabilitation, 36(3), 210-219.

Alsem, M. W., Siebes, R. C., Gorter, J. W., Jongmans, M. J., Nijhuis, B. G. J. et Ketelaar, M. (2014). Assessment of family needs in children with physical disabilities: Development of a family needs inventory. Child: Care, Health and Development, 40(4), 498-506.

Baker, D. L., Miller, E., Dang, M. T., Yaangh, C.-S. et Hansen, R. L. (2010). Developing culturally responsive approaches with Southeast Asian American families experiencing developmental disabilities. Pediatrics, 126(Suppl. 3), S146-S150.

Ben-Cheikh, I. et Rousseau, C. (2013). Autisme et soutien social dans des familles d’immigration récente : l’expérience de parents originaires du Maghreb. Santé Mentale au Québec, 38(1), 189-205.

Bourke-Taylor, H., Cotter, C. et Stephan, R. (2014). Young children with cerebral palsy: Families serf-reported equipment needs and out-of-pocket expenditure. Child: Care, Health and Development, 40(5), 654-662.

Canary, H. E. (2008). Creating supportive connections: A decade of research on support for families of children with disabilities. Health Communication, 23(5), 413-426.

Côté, D. (2013). Intercultural communication in health care: Challenges and solutions in work rehabilitation practices and training: A comprehensive review. Disability and Rehabilitation, 35(2), 153-163.

Daudji, A., Eby, S., Foo, T., Ladak, F., Sinclair, C., Landry, M. D., Moody, K. et Gibson, B. E. (2011). Perceptions of disability among South Asian immigrant mothers of children with disabilities in Canada: Implications for rehabilitation service delivery. Disability and Rehabilitation, 33(6), 511-521.

Fellin, M., Desmarais, C. et Lindsay, S. (2015). An examination of clinicians’ experiences of collaborative culturally competent service delivery to immigrant families raising a child with a physical disability. Disability and Rehabilitation, 37(21), 1961-1969.

Gouin, J.-P., da Estrela, C., Desmarais, K, et Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving stress. Family Relations: Interdisciplinary Journal of Applied Family Studies, 65(1), 191-206.

Guralnick, M. J., Hammond, M. A., Neville, B., et Connor, R. T. (2008). The relationship between sources and functions of social support and dimensions of child- and parent-related stress. Journal of Intellectual Disability Research, 52(12), 1138-1154.

Hall, H. R. et Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25.

Harry, B. (2008). Collaboration with culturally and linguistically diverse families: Ideal versus reality. Council for Exceptional Children, 74(3), 372-388.

Hodgetts, S., Zwaigenbaum, L. et Nicholas, D. (2015). Profile and predictors of service needs for families of children with autism spectrum disorders. Autism, 19(6), 673-683.

Imbert, G. (2010). L’entretien semi-directif : à la frontière de la santé publique et de l’anthropologie. Recherche en Soins Infirmiers, 102(3), 23-34.

Jegatheesan, B., Miller, P. J. et Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and other Developmental Disabilities, 25(2), 98-109.

Jennings, S., Khanlou, N. et Su, C. (2014). Public health policy and social support for immigrant mothers raising disabled children in Canada. Disability and Society, 29(10), 1645-1657.

Khanlou, N., Haque, N., Sheehan, S. et Jones, G. (2014). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840-1847.

Khanlou, N., Mustafa, N., Vazquez, L. M., Haque, N. et Yoshida, K. (2015). Stressors and barriers to services for immigrant fathers raising children with developmental disabilities. International Journal of Mental Health and Addiction, 13(6), 659-674.

King, G., Desmarais, C., Lindsay, S., Piérart, G. et Tétreault, S. (2015). The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities. Disability and Rehabilitation, 37(15), 1372-1381.

King, G., Esses, V. M. et Solomon, N. (2013). Immigrant and refugee families raising children with disabling conditions: A review of the international literature on service access, service utilization, and service care experiences. Dans E. L. Grigorenko (Ed.), Handbook of US immigration and education (p. 179-206). New-York, NY: Springer.

Lai, Y. et Ishiyama, F. I. (2004). Involvement of immigrant Chinese Canadian mothers of children with disabilities. Council for Exceptional Children, 71(1), 97-108.

Lawton, K. E., Gerdes, A. C., Haack, L. M. et Schneider, B. (2014). Acculturation, cultural values, and Latino parental beliefs about the etiology of ADHD. Administration and Policy in Mental Health and Mental Health Services Research, 41(2), 189-204.

Lewig, K., Arney, F. et Salveron, M. (2010). Challenges to parenting in a new culture: Implications for child and family welfare. Evaluation and Program Planning, 33(3), 324-332.

Lin, M.-C, Macmillan, M. et Brown, N. (2010). The formal support experiences of mothers of adolescents with intellectual disabilities in Edinburgh, UK: A longitudinal qualitative design. Journal of Nursing Research, 18(1), 34-42.

McCubbin, H. I. et Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Dans H. I. McCubbin, M. B. Sussman et J. M. Patterson (Eds.), Social stress and the family: Advances and developments in family stress theory and research (p. 7-37). New York, NY: The Haworth Press.

Miles, M. B. et Huberman, A. M. (2003). Analyse des données qualitatives (2e éd.). Bruxelles, Belgique : De Boeck Université.

Mortensen, A., Latimer, S. et Yusuf, I. (2014). Cultural case workers in child disability services: An evidence-based model of cultural responsiveness for refugee families. Kōtuitui: New Zealand Journal of Social Sciences Online, 9(2), 50-59.

Neely-Barnes, S. L. et Dia, D. A. (2008). Families of children with disabilities: A review of literature and recommendations for interventions. Journal of Early and Intensive Behavior Intervention, 5(3), 93-107.

Paillé, P. et Mucchielli, A. (2012). L’analyse qualitative en sciences humaines et sociales (3e éd.). Paris, France : Armand Colin.

Pondé, M. P. et Rousseau, C. (2013). Immigrant children with autism spectrum disorder: The relationship between the perspective of the professionals and the parents’ point of view. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 22(2), 131-138.

Povenmire-Kirk, T. C., Lindstrom, L. et Bullis, M. (2010). De escuela a la vida adulta/From school to adult life: Transition needs for Latino youth with disabilities and their families. Career Development for Exceptional Individuals, 33(1), 41-51.

Pozo, P., Sarriá, E. et Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58(5), 442-458.

Riggs, E., Davis, E., Gibbs, L., Block, K., Szwarc, J., Casey, S., Duell-Piening, P. et Waters, E. (2012). Accessing maternal and child health services in Melbourne, Australia: Reflections from refugee families and service providers. BMC Health Services Research, 12, 1-16. Repéré sur le site de la revue : https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-12-117

Stewart, M., Anderson, J., Morton, B., Mwakarimba, E., Neufeld, A., Simich, L. et Spitzer, D. (2008). Multicultural meanings of social support among immigrants and refugees. International Migration, 46(3), 123-159.

Tétreault, S., Blais-Michaud, S., Marier-Deschênes, P., Beaupré, P., Gascon, H., Boucher, N. et Carrière, M. (2014). How to support families of children with disabilities? An exploratory study of social support services. Child and Family Social Work, 19(3), 272-281.

Weiss, J. A., Tint, A., Paquette-Smith, M. et Lunsky, Y. (2016). Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder. Autism, 20(4), 425-434.

Xue, J., Ooh, J. et Magiati, I. (2014). Family functioning in Asian families raising children with autism spectrum disorders: The role of capabilities and positive meanings. Journal of Intellectual Disability Research, 58(5), 406-420.

Zuckerman, K. E., Sinche, B., Cobian, M., Cervantes, M., Mejia, A., Becker, T. et Nicolaidis, C. (2014). Conceptualization of autism in the Latino community and its relationship with early diagnosis. Journal of Developmental and Behavioral Pediatrics, 35(8), 522-532.




DOI: http://dx.doi.org/10.15353/cjds.v6i4.384

Refbacks

  • There are currently no refbacks.




 

The Canadian Journal of Disability Studies is Published by the Canadian Disability Studies Association-Association Canadienne des Études sur l'Incapacité, and is hosted and supported by the University of Waterloo.

ISSN 1929-9192 Canadian Journal of Disability Studies (Online)