Reflections on Advocating for Age-Appropriate Care in B.C.: An Intricate Dance of Crip Time and Governmental Processes
DOI :
https://doi.org/10.15353/cjds.v9i3.648Résumé
What happens when you’re chronically ill and your community supports can no longer care for you at home? In B.C., you go into a long-term care facility, if there are beds available, where the average age of clients is 85. Multiple sclerosis (MS) affects four times more women than men, and many women face these decisions in their thirties and forties. Those who enter long- term care facilities often never leave, and are forced to live in a medicalized environment designed for people twice their age. Advocating for change as a disabled activist requires an intricate dance, weaving in the strands of crip time and the political calendar to achieve change for those who are forced to live in a time that is out of step with their needs and desires.
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