Using Technology to Enhance Services and Supports for Children and Youth with Disabilities and Medical Complexity and their Families in Canada: A Scoping Review

Authors

  • Alison J. Gerlach School of Child & Youth Care University of Victoria, Canada
  • Amarens Matthiesen Graduate Research Assistant School of School of Child & Youth Care University of Victoria, Canada
  • Kim Bulkeley Senior Lecturer Sydney School of Health Sciences University of Sydney, Australia
  • Katie Gibbs School of Child & Youth Care University of Victoria, Canada

Keywords:

Telehealth, telerehabilitation digital literacy, digital equity, early intervention, northern, rural

Abstract

In Canada and internationally, the use of technology to enhance community-based health and developmental services and supports with children and youth has increased dramatically as a result of the COVID-19 pandemic. In the Canadian context, how technology-enabled supports and services have developed and can be integrated as a long-term option in addition to in-person services requires further examination. This scoping review maps out existing and emerging themes in Canadian research published on how different technology modalities are being used in home and community settings with children and youth with disabilities and medical complexity and their families. A literature search conducted across seven databases between 2011 and 2023 resulted in potentially relevant publications, of which 12 met the inclusion criteria. The findings provide insights into how various technologies are being used and combined in order to provide parenting training and coaching and timely access to assessments in a continuum of care without the burden of travel time and costs. Also, the potential of technology to create peer support networks both for parents and older youth with disabilities. These findings can inform funding bodies and community organizations serving this population in undertaking in depth and critical analyses of how technology can be further integrated into hybrid models of service delivery. Further research and actions are also needed to address issues of digital equity.

Author Biographies

Alison J. Gerlach, School of Child & Youth Care University of Victoria, Canada

Associate Professor, School of Child & Youth Care University of Victoria, Canada

Amarens Matthiesen, Graduate Research Assistant School of School of Child & Youth Care University of Victoria, Canada

Graduate Research Assistant School of School of Child & Youth Care University of Victoria, Canada

Kim Bulkeley, Senior Lecturer Sydney School of Health Sciences University of Sydney, Australia

Senior Lecturer
Sydney School of Health Sciences University of Sydney, Australia

Katie Gibbs, School of Child & Youth Care University of Victoria, Canada

Youth Community Researcher

School of Child & Youth Care University of Victoria, Canada

Published

2023-09-14

How to Cite

Gerlach, A. J., Matthiesen, A., Bulkeley, K., & Gibbs, K. (2023). Using Technology to Enhance Services and Supports for Children and Youth with Disabilities and Medical Complexity and their Families in Canada: A Scoping Review. Canadian Journal of Disability Studies, 12(2), 81–109. Retrieved from https://cjds.uwaterloo.ca/index.php/cjds/article/view/1012

Issue

Section

Articles